Hi y’all and thank you for all the support and information…

My husband is almost 76, non smoker ( ever), non drinker, walks the doggie on trails between 1.5-2 miles every morning and when weather is not so hot, 1 mile evening as well. Plays golf 3 days a week. Not overweight and I try to feed him/us very healthy meals.

Such a shock…I researched trials and after finding lots of info about that idea, as well as availability and location issues, decided that taking such a huge chance to get the good pill wasn’t worth it

We have a good pulmonologist; he asked for her opinion; she recommended Ofev, between the two approved ipf meds…more money, but less potential side effects than the other one I can’t remember the name of…

Ofev has been around for about 8 years…no cure, just potential slowing. Good information support system. Of course, there is no way to determine life expectancy; every one is different.

Was tough to convince him to take it, price, yes, but nasty side effects
( bad diarrhea is very/most common).

I just went to a modified BRAT diet at start of medication-easier to add food than take away. So far, so good. Eating most things now and no problem.

Has had recent ct w/contrast and so far, no change. Second liver test was good. If he gets a third good monthly test, then move to every 3 months.

Primary care doc found it after
I “ forced “ him to go to doc for little dry cough. Good guy!

Took antibiotics and has cleared cough, and stayed clear. We are working hard on gerd, which we both have. That can be a trigger.

We both continue to research; he makes me a little (lot?) crazy that he thinks zink and some other things mixed together will heal lungs. Mouse Petri dish study…

Discussed that with doctor and she already knew of the study, and said he needs a year on the meds to see what is or is not happening without interference from other chemicals.

So hard, because he feels fine, but now this thing is shadowing our every day. Try to feel grateful that he feels well, no pain and is active.

For those that have followed me a bit, and new posters, thank you-I think it is very helpful to be able to share and vent on sone level, to people who understand…

❤️❤️❤️

Ps so sorry this medication was not available sooner for your family…