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Primary sclerosing cholangitis
Autoimmune Diseases | Last Active: Aug 6, 2023 | Replies (9)Comment receiving replies
@mkempson42 Have you not been able to get a diagnosis yet? Have you found a good gastroenterologist? Here is a link to Genetic and Rare Diseases website. They are able to help most people find a good doctor.
https://rarediseases.info.nih.gov/contact/
Will you let me know what they are able to do for you?
Replies to "@mkempson42 Have you not been able to get a diagnosis yet? Have you found a good..."
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I thought I found someone who maybe possibly diagnosed me. He was to be my my new primary who also specializes in internal medicine. I've been waiting a month to see him as the soonest because of being a new patient. The morning of my appointment I got a call from his office stating the appointment was canceled and I have to reschedule due to a meeting he had to attend. Next available is in September...no sooner.