← Return to Diagnosed with Cerebral Venous Sinus Thrombosis (CVST)

Discussion
Comment receiving replies
@sandorclegane

Hello, I was diagnosed with CVST seven months ago. I had a sinus and ear infection and it turns out, bacterial meningitis. Doctors think one of those infections caused the blood clot to for in my brain. I would say I've made a full recovery minus my vision problems that persist. I have dark spots in each eye that I'm told are permanent, but one eye seems to do an adequate job of picking up what the other can't, it is at least manageable. What is increasingly difficult to manage is the fog I see through. I've tried to research this but haven't had much luck, it seems to be a result of the optic neuritis suffered due to the CVST. In full light, like mid-day, I can't see vibrant colors, it looks as though everything I see has been painted over with white. The more objects there are in sight, the more everything blends together. It's bad enough that I don't feel comfortable driving, even though my Opthalmologist cleared me to do so. My dad knows a lady who went through the same thing and she said the "fog" lifted after about a year and she got back to a semblance of normalcy. I was just curious to see if anyone else experienced this and if they had any luck with it getting better, as everyone knows, getting answers regarding CVST are exceedingly difficult. Thank you all for your stories.

Jump to this post


Replies to "Hello, I was diagnosed with CVST seven months ago. I had a sinus and ear infection..."

Hello there. I also have problems with my eyesight. I have difficulty with focusing on objects and being able to identify what they are at times. Not always, but sometimes. And also with things being blurry. I don't know why, but only sometimes. And there are too many days that I can't even drive due to that. It drives me nuts. I also have problems with cold sweats and still my memory too after 5 months. But if you are caucasian please get a test for Factor V Leiden blood clotting disorder. They discovered I have that mutation that causes blood to clot easily when I was in a coma from the cvst. And that was even after a TIA in 2021.