Osteoporosis treatment

I had to stop taking Evenity after the 5th dose. As I stated on another blog " My Experience on Evenity for treating Osteoporosis". My side effects in the beginning were manageable: headache, tiredness a little brain fog. But after the fourth dose I started having lower back pain, my BP starting getting higher and I started getting palpitations. My MD didn't seem concerned. After the fifth dose my palpitations were keeping me up at night and I got scared. I am a healthy 62 year old with no other health issues besides OP. I stopped on my own. I am still dealing with the palpitations unfortunately. I recently went to another MD an Endocrinologist this time, she truly listened to my concerns and stated I needed to be on a bisphosphonate to " lock in" any gains I got from taking the Evenity. My DEXA scan had no improvement at all but she felt that I needed a short term (12 month) course of a medication. I choose to go on Fosamax instead of Reclast. Everyone is unique in their journey with OP so I encourage you to do your research and get educated on the benefits/side effects possible with this medication. I also encourage you to get the book " Great Bones" by R Keith McCormick, excellent book with a lot of information and knowledge by the author who also has OP. Good luck with your decision, you have a lot of support on this site.

Hello,
I’m just joining this thread. I’ve been on Evenity for 3 months. I am beginning to see a pattern regarding side effects which is that a day or two after the injections, I am really tired. This goes away by the next day, so it’s nothing I can’t handle.
It’s interesting that when we talk about side effects, we only speak of the ones we ‘experience’. Of course, there could be side effects that are not noticeable such as negative effects on the immune system.
Still, I have chosen to take this drug and probably a bifosphonate after Evenity.
I’m going to trust the system. 🙂

Hello,
I’m just joining this thread. I’ve been on Evenity for 3 months. I am beginning to see a pattern regarding side effects which is that a day or two after the injections, I am really tired. This goes away by the next day, so it’s nothing I can’t handle.
It’s interesting that when we talk about side effects, we only speak of the ones we ‘experience’. Of course, there could be side effects that are not noticeable such as negative effects on the immune system.
Still, I have chosen to take this drug and probably a bifosphonate after Evenity.
I’m going to trust the system. 🙂

I have always exercised and taken supplements and blood work has always been normal. My osteoporosis has worsened and now I am a T- score of -4.6 in my spine. I am planning to start on Evenity. The side effects sounds awful but I like the thought of a dual action of bone building and to slow any bone loss.

My T-score is -5.1 in the spine. I am on Tymlos for possibly two years. Coming up on one year and will have a bone density test in December. I consulted with Dr. Keith McCormick in MA (flew there from Texas) and am following his recommendations.

to susanfalcon52
You are right that each case of OP and medicine's effectiveness is individual. I have met a very useful explanation of the issue by Dr. Doug Lucas for the case of bisphosphonates. Here it is and hope that will help you to take a decision

Do you mind sharing his recommendations? Would greatly appreciate it. My spine t score is -4.6
Kristie

I was diagnosed with osteoporosis in 2000 (I was 50). I opted to try lifestyle and diet changes; I was totally against medication. My T-score continued to get worse, but I felt fine, so decided to continue on until I had the first fracture. Ha! After slipping on the ice in Feb 2021 and fracturing T-10 I visited a spine doctor who told me I already had fractures! What? I had no idea. He said they could be silent and painless. I started on the Calton regimen from their book 'Rebuild Your Bones'. Excellent info about nutrients, food that hampers bone-building, etc. I changed my diet radically, cutting out healthy foods that are fine for someone else, but not me. I am also careful not to BLT--bend, lift or twist. I found Dr. McCormick on a podcast and was so impressed by how knowledgeable he was, having had osteoporosis himself. I had been trying to figure it out myself and decided to fly to Massachusetts (from Texas) for a consultation. The first thing he said to me was that I had no choice but to go on medication (since my osteoporosis was so advanced). He ordered many blood tests, which my local doctor was willing to order. Dr. M. interprets them and makes recommendations. He recommended Tymlos since it builds the most bone (I had tried Forteo in the early 2000's, but did not gain the bone he thought I should have). He makes recommendations according to an individual's situation. The blood tests show important biomakers, telling him much about the person's status. It is wonderful to have a truly knowledgable person walking with me through this. I had no confidence in your typical doctor to really know what to do. I am reading his book, 'The Whole Body Approach to Osteoporosis' for the second time. My next bone density test is in December, so I'll know where I am now. For those who cannot go to MA, Dr. McCormick does phone consultations after receiving the results from the tests he recommends. Since seeing him in August 2022 I have talked to him three times by phone with questions that have come up. I use supplements from Calton Nutrition and Dr. McCormick--Osteonaturals. The two books I mentioned are essential, in my opinion. I wish you well, Kristie.