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Treating Osteoporosis: What works for you?
Osteoporosis & Bone Health | Last Active: Nov 3, 2023 | Replies (1084)Comment receiving replies
Hi JK, The cost of Tymlos is like a rollercoaster depending on when and how much my medicare supplement is paying. Last year it ended up being approximately $131/per month with the nominal amount of $90 in October, November, and December. So far this year it has been around $300/mo. I have a by mail supplement and because of the COVID-19 purchased 3 months at a time. It was on backorder through my local pharmacy. So the manager found me folks to chat with at the manufacturer and a specialty pharmacy. My Endocrinologist and staff started calling their other patients and providers to see if anyone had a "tide me over" supply. What a wonderful world this can be.
I wish I could be more helpful......I just don't do $$$$rollercoasters well.
Chris
I was pretty darn overwhelmed with that kind of assistance.
May you feel safe and protected.
Replies to "Hi JK, The cost of Tymlos is like a rollercoaster depending on when and how much..."
@gailBL, @jk, @lillypaws, @nancy1228,
I may have some good news for those of you who are on Tymlos or possibly Forteo. I may be in something greater than the glory hole. Have any of you worked with or heard of Optum Specialty Pharmacy. This pharmacy only fills prescriptions for specialty medications like Tymlos because of the refrigeration requirements until opened, and the distribution system which is by subcutaneous self-injections. Please let me know if you want, need, or just would like to have contact information.
The reason that I am passing this along is that I am on my second refill and I place a 90-day order to avoid backorder problems with COVID-19. I have been treated like a valued customer and have had no problems with the shipment. j
And now....here is the other news. Last 90 days, my 30-day refills were $300. That is much better than the $1000 every 30-day refill last year with the local pharmacy. This week, each 30 day supply was about $35 with Optum. The order also includes the needles and touchpads at no additional charge.
Do you know what that might mean for Forteo and/or Tymlos patients? Please share your "secrets" with me or ask questions for me to hopefully answer.
May you all be free of suffering and the causes of suffering.
Chris
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@artscaping I presume the varying prices have to do with the "donut hole". When I was on xifaxan, a very expensive medicine, prior to transplant, it was costing us between $600 and $700 a month until we hit the donut hole. Then we had to pay even more and after we came out the other side of the donut hole the cost went way down.
With Tymlos, do you have to inject yourself daily, and if so where do they recommend injecting it?
I really appreciate your input. Thank you.
JK