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Has anyone watched the webinar “Bronch question time webinar”

Posted by hikergal2023 @hikergal2023, Aug 3, 2023

I just watched this video on YouTube and this webinar was very informative .
The European lung foundation had this webinar called “ Bronchiectasis Question Time webinar”

It is a one hour panel of bronch experts (including MD from Mayo) to answer questions that concern you about bronch
I would recommend this video as it was so informative.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

scoop | @scoop | Aug 3, 2023

@hikergal2023 Learned a lot from the conference in 2022 -- glad to know there's a new one. The info from bronchiectasis patients is invaluable. Their whole conference is informative. Watching it on Youtube is great because it can be sped up with subtitles. It was from one of these sessions years ago I first learned about using 7% saline. Had to talk my doctor/NP into it!

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barbdk | @barbdk | Aug 4, 2023
In reply to @scoop "@hikergal2023 Learned a lot from the conference in 2022 -- glad to know there's a new..." + (show)
@scoop

@hikergal2023 Learned a lot from the conference in 2022 -- glad to know there's a new one. The info from bronchiectasis patients is invaluable. Their whole conference is informative. Watching it on Youtube is great because it can be sped up with subtitles. It was from one of these sessions years ago I first learned about using 7% saline. Had to talk my doctor/NP into it!

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I’ve been using 7% saline for quite a while, only because 3%is unavailable due to supply chain issues. Doesn’t seem to make much of a difference. I haven’t ever produced any phlegm, not ever.

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Mentor
Sue, Volunteer Mentor | @sueinmn | Aug 4, 2023

Hmmm... talk about seendipity. We recently started a new discussion topic, "MAC/NTM is Different for Everyone, Treatment might be different too"
https://connect.mayoclinic.org/discussion/macntm-is-different-for-everyone-treatment-might-be-different-too/
Then @hikergal2023 and @scoop posted this great link.
I think one of the big takeaways from the Q & A is that everyone has their own journey with Bronchiectasis, and management is different for each ofus.
Sue

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