1. < Head & Neck Cancer

Diagnosed with 5 mm tumor in pyriform sinus

Posted by tiatia11 @tiatia11, Nov 7, 2022

Have to wait until Nov 29th to see my ENT. Gastro found the tumor. Seems like the only growths in this area are carcinomas. Has anyone beat pyriform sinus cancer and how?

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preyn | @preyn | Aug 3, 2023
In reply to @colleenyoung "Welcome, @preyn, you've come to the right place to connect with other members who have experience..." + (show)
@colleenyoung

Welcome, @preyn, you've come to the right place to connect with other members who have experience with pyriform sinus carcinoma and hypopharyngeal cancer, like @thomason @tiatia11 @anonymous217382 and others.

It sounds like tomorrow is a consultation with your cancer care team to discuss treatment options and plan forward. Is that right?
Have you started a list of questions?

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@colleenyoung
Yes I have my questions ready. I have read some research regarding this cancer.
I am just praying they will be able to treat. ENT says inoperable so have lots of questions.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 3, 2023
In reply to @preyn "@colleenyoung Yes I have my questions ready. I have read some research regarding this cancer. I..." + (show)
@preyn

@colleenyoung
Yes I have my questions ready. I have read some research regarding this cancer.
I am just praying they will be able to treat. ENT says inoperable so have lots of questions.

Jump to this post

Good for you. Keep in mind that inoperable doesn't mean untreatable. Radiation and chemo are often viable treatment options. But I'm sure you know that from your research.
I'll be thinking of you tomorrow and be interested in hearing what you learn.

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1 reply
preyn | @preyn | Aug 3, 2023
In reply to @colleenyoung "Good for you. Keep in mind that inoperable doesn't mean untreatable. Radiation and chemo are often..." + (show)
@colleenyoung

Good for you. Keep in mind that inoperable doesn't mean untreatable. Radiation and chemo are often viable treatment options. But I'm sure you know that from your research.
I'll be thinking of you tomorrow and be interested in hearing what you learn.

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Thank you. I will let you know

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thomason | @thomason | Aug 4, 2023
In reply to @preyn "Husband sees Medical Oncologist and Radiation Oncologist tomorrow Aug. 4. Pyriform Sinus Squamous Cell cancer was..." + (show)
@preyn

Husband sees Medical Oncologist and Radiation Oncologist tomorrow Aug. 4.
Pyriform Sinus Squamous Cell cancer was found. Metastasis to lymph nodes. ENT who did biopsy and mass debulking says it Stage 4.
Anyone have this? Care to share your experience and treatment?

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Hello @preyn. I am a 64-year-old-woman, diagnosed with Pyriform Sinus cancer in 2018. If you go onto my profile, I have written extensively about my journey. If you have any questions, feel free to ask. It is a slow journey to recover the functions of the throat after treatment, yet is very possible with throat exercises, and the best one of all...time. Please research "Red Light Therapy," as it has proven to help radiated tissue. I utilized a small, inexpensive wand twice-a-day during my radiation treatments, by waving it inside my throat and mouth area. The main thing that helped me greatly was prayer. Best wishes to you and your husband in this journey.

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1 reply
preyn | @preyn | Aug 4, 2023
In reply to @thomason "Hello @preyn. I am a 64-year-old-woman, diagnosed with Pyriform Sinus cancer in 2018. If you go..." + (show)
@thomason

Hello @preyn. I am a 64-year-old-woman, diagnosed with Pyriform Sinus cancer in 2018. If you go onto my profile, I have written extensively about my journey. If you have any questions, feel free to ask. It is a slow journey to recover the functions of the throat after treatment, yet is very possible with throat exercises, and the best one of all...time. Please research "Red Light Therapy," as it has proven to help radiated tissue. I utilized a small, inexpensive wand twice-a-day during my radiation treatments, by waving it inside my throat and mouth area. The main thing that helped me greatly was prayer. Best wishes to you and your husband in this journey.

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Thank you so much. I will read about your journey.
We are living on the prayers of our family, friends and who ever else will pray.
I will add you to my prayer list.

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2 replies
thomason | @thomason | Aug 4, 2023
In reply to @preyn "Thank you so much. I will read about your journey. We are living on the prayers..." + (show)
@preyn

Thank you so much. I will read about your journey.
We are living on the prayers of our family, friends and who ever else will pray.
I will add you to my prayer list.

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@preyn, thank-you so much.

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Mentor
William Olsen, Volunteer Mentor | @hrhwilliam | Aug 14, 2023
In reply to @preyn "Thank you so much. I will read about your journey. We are living on the prayers..." + (show)
@preyn

Thank you so much. I will read about your journey.
We are living on the prayers of our family, friends and who ever else will pray.
I will add you to my prayer list.

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Hello @preyn, I am just checking in with you that all is going OK with your husband so far. I believe the tumor was pea sized, about 5mm which certainly shows it was caught early.
Let me know if you have any questions. Just thinking about you.

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1 reply
preyn | @preyn | Aug 14, 2023
In reply to @hrhwilliam "Hello @preyn, I am just checking in with you that all is going OK with your..." + (show)
@hrhwilliam

Hello @preyn, I am just checking in with you that all is going OK with your husband so far. I believe the tumor was pea sized, about 5mm which certainly shows it was caught early.
Let me know if you have any questions. Just thinking about you.

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Hi Thank you for checking.
My husband’s primary is throat - velucula area. He is spread to neck lymph nodes, near Stenocleismoastoid, and jugular. PET Scan showed NO distant Mets all in neck area.
Had mediport done aug 11. Waiting to hear from Medical Onc for Chemo start date.
I like to read to get an idea of what to expect. This is hard waiting, thinking of what will happen and yet feeling so strong because he wants to fight hard.

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