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Treating Osteoporosis: What works for you?

Osteoporosis & Bone Health | Last Active: Sep 2 10:11am | Replies (1085)

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@artscaping

@curlylocks, @julie2020, @sue225, and others facing similar issues. Good evening ladies. I see that two of you may be facing a medication decision for osteoporosis. We, (post-menopausal females and males with special needs) in an attempt to have stronger bones for longer and happier lives, have a lot of things to consider. What is our starting point, how old are we, what fractures have we already had, how active are we, do we have access to an endocrinologist or an institutional/research facility with an interest in this phase of all women's lives?

There are lots of questions. I have an opportunity this week to find out some answers to questions that pop up frequently. Tymlos or Forteo is just one of those questions. My repetitive question is, and then what? I am just completing my first year of Tymlos. No side effects, no worries about getting it anymore after it was back-ordered during the early COVID days. When will I see improvement....how much? Since I have severe allergies to bisphosphonates......there aren't many options. Evenity.....is a new medication. How does it work and for whom will it be beneficial?

Do you or anyone else who is sharing these posts have general or even specific questions right now? For those of you who are getting DEXA scans this spring what are you seeing? Improvements? Better than expected? Lacking in something?

For those who have chosen exercise and modified natural diets, how is that working at this point? What kinds of encouragement do you see or want to see?

I just thought that since I was facing these issues this week, I would find out a bit about what other women are thinking, questioning and worrying about. I am not easily convinced, one way or the other. I am looking, like you, for evidence of improvement. Help me out here......let me know what you would ask.

May you all have happiness and the causes of happiness.
Chris

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Replies to "@curlylocks, @julie2020, @sue225, and others facing similar issues. Good evening ladies. I see that two of..."

I am presently on Prolia and due for my yearly appointment with my endocrinologist on July 1st. I will have a DEXA test then to see how I’m doing as I was on Tymlos last year (off and on due to side effects). I had broken my foot in 2019. Prolia doesn’t cause me any problems and I had taken it many years ago and had opted for a year off medication. Not a good choice (against doctors advice). I lost all the gains I made plus some....it is a challenging situation. Good luck!

Hi Chris,
After months of denials from insurance company, I was finally approved for Evenity and will hopefully start injections next week. Of course, as with all medications, there are side effects however I’ve made the choice to take in hopes that it will help build bone, especially in my spine, where I need it the most.

I will also be taking a diuretic, Hydrochlorothiazide, (since I also was diagnosed with idiopathic hypocalcemia), along with D3 once a day. The diuretic contains sulfa, and since I had an allergic reaction 40 years ago to a sulfa drug I will need to go to visit an allergist to verify if I still have the allergy....ugh!

It saddens me that there are so many struggles in trying to get better, however I will not give up! I want to be strong to be able to play with my grandchildren for years to come without the fear of damaging my spine!

In your email it mentions that you will find out some answers...could you please let me know if there is any information on Evenity? I know it’s a new drug, but hopefully there is some information.

Also, if anyone could share some online videos, or other information regarding exercises.....would like to start this as well.

Thanks so much,
-Arlene