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Rifampin side effects

MAC & Bronchiectasis | Last Active: Aug 3, 2023 | Replies (24)

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@rosnat

Thank you so much for that information. You really did fight it I give you a lot of credit for that and everything else you have been through. Thanks so much for taking the time to let me know.
Right after I posted that my brother who I have been helping fight his bladder cancer at Shands hospital had an accident with his scooter and before we even could find him they did surgery and he didn't make it, so I have been working on all his stuff now plus I don't have him here anymore for advice. He was awesome and my best friend. I don't have any nodules or bronchiectasis, so they say. But my infectious disease dr. says I have to take these for 2 years every day. They are killing me so if he doesn't do something different, I am going to try to go to Mayo in Jax. I have to find out if they accept my insurance first. It just seems to me that others with much more damage are only taking them 3 times a week and as you say are able to stop after one year not two. I have an appointment on Tuesday coming up so I will see what he says. His nurse told me if I dont take them everyday I will build a resistance to them. That doesnt sound right either. So heres hoping I get better answers soon, but Thanks again for your help.
Rose

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Replies to "Thank you so much for that information. You really did fight it I give you a..."

Just my opinion...but sounds like you do need a different doctor!

I am do sorry to hear about your brother. May he rest in peace.
Seeing others response to you. I would also recommend another opinion. I am on 3 days a week. If you have cavities in your lung i was told you would need everyday meds.
Also the time frame for how long to take meds depends in when you start negative sputum cultures. I started meds in feb of 22 and my first negative sputum was end of September if 22. We then count 12 months to end the meds. So far all my sputum cultures have been negative. So i finish at the end of September. You don’t know how i am counting my days. The only good thing about the meds is that the clofazimine has given me a beautiful color. I usually tan bec i am cuban but the color i have now is deeper than i usually get😎
Hope you can get that second opinion keep ys updated. Miriam