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@mikeshell

Thank you so very much for this information. Knowledge is the key ingredient to making smart choices and decisions. My reduction from 5mg to 3mg has been relatively slow. I took 5mg each day for one month, then alternated between 5mg one day, 4mg the other day for one month. Then, 4mg each day for an entire month, then back to the same routine of alternating 4mg/3mg respectively. I have stayed on 3mg for the past 3 months and now having more issues with soreness, stiffness in shoulders and hips, bouts of fatigue and lightheadedness. I am considering increasing back to 5mg as I felt like I could tolerate my PMR at that level.

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Replies to "Thank you so very much for this information. Knowledge is the key ingredient to making smart..."

@mikeshell Hmmm -- that is interesting tapering protocol - again i am curious - did your rheumatologist and you come up with this ? I have had some luck contacting some of the first authors of these papers -- i will send an email to ask if there has been more data from the study i posted above - these patients' Prednisone dose after 24 months was *only* {my emphasis] 4.8 mg (s.d. 3.4). I personally am always wondering now what exactly would trigger a flare up of the pain/stiffness -_ Have you seen this or other figures such as this ,before . I really liked this review article that had this figure. On another personal note - my cousin had PMR about 10 years ago -- he only had trouble trying to go below about 2mg and at that point he reduced by. 0.5mg !! he was astonished that was what made all the difference for him ! All these years later - no relapses ! so stay positive MIKE !!!

Shared files

update on PMR 2022 JOIM-292-717 (update-on-PMR-2022-JOIM-292-717.pdf)