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Hello @mopostorino and welcome to Mayo Connect. Thank you for sharing your HOCM experience with others. It is comforting to know that you are not alone with your symptoms. I used to think I was crazy a little bit when on occasion I would indulge in a big breakfast or large meal and feel awful. It was not every meal, just the rare big ones. Like you say, when I would do my 6 mile walk I had to have an empty tummy. I'm glad you found the HCM group. There is a lot of information you can read that may help you understand your disease and also you can share your journey with others that may help them as well. I was on four different beta/calcium channel blockers and Disopyramide. I ended up having a septal myectomy at the Mayo Clinic, as I just got worse and worse When did you first find out you had HOCM? Did it take time to finally be diagnosed with HOCM?
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Hi Debra! Well, sorry for the late reply. We have been moving our daughter to college, so been a bit out of pocket the past few weeks! Thank you for your note and welcome. I am happy to connect and learn of others' experiences on this road we walk. I am on a beta blocker, which my doctor wants to increase, but I'm doing that slowly, as, of course as you know, it makes you tired and workouts are more difficult. Glad you were able to have surgery. Did it help? I found out I had HOCM in my early 30's after a routine visit to an internal specialist who was also a cardiologist. He did routine EKG's on all patients and mine was highly irregular. After that, we did an echo and of course, it was diagnosed immediately. Since then, however, I have noticed that, in times I have taken off from strenuous exercising (which I have done since I was 16), my septal thickness improves. Hard to find a balance in the exercise sphere for me. I have a hard time finding that "moderation" space, you know? Well, anyway, nice to get your note and hope you are feeling well! All the best, M