hello.
my name is Danny.
I have been experiencing certain health related issues for some time throughout my life. kidney stones and sleep apnea to name a few.
I was admitted recently into NCH hospital for pain. I asked the nurses to check for DVT as my mother had suffered one herself in her life and at that time, I was not informed she was factoring 8 positives. When I was admitted, the first shot of heparin in the stomach that they give to everyone cleared up all the sharp spiking pains that I have had constantly with no diagnosis. only nurses and doctors highly agitated with me. every time, I have had to emotionally explain to these health care professionals that I was there for care not drugs.
I recently had left leg surgery and experienced a DVT in my calf area. I don't know how it occurred, I was told surgery only took 8 minutes for meniscus repair, but I have questions in this regard as the operative report was filled out 2 hours before surgery took place. if you are unaware, an operative report should be filled out while surgery is happening or right after for accuracies of what occurred. I recommend asking that all your surgeries be taped for now on. Seriously. I awoke violently throwing up upon waking me up. I feel as if the anesthesia was too strong for that period of time, but I am no doctor. upon discharge I was taken out to my ride with IV still in my arm. shocking right? it gets better. when I called the hospital and spoke to the patient care "specialist" and explained the instance, I was told this "Mr. H. I guess it's a good thing you're not an intravenous user now, isn't it?"
Here's the funny thing. I understand factor 8 and they didn't even know what it was. I was ridiculed for informing them or asking them to understand. i understood from reading articles in search for answers for YEARS, that my wounds from working as an electrician doing very hard labor healed very slowly. at times, it took up to a year before the wound would completely heal leaving scars. The hospitals, Drs, nurses, and office staff was under the false impression that I was a user. this hurt and still does. I have been escorted out of hospitals for asking them to take it a step further and that something was occurring tome. again. police called, security escorted, male nurses and Ent showing me the door for asking them to be healthcare workers. yes. all of them laughed at me as I painfully walked to my car each time. thousands of dollars in visits for no answers. It is very aggravating.
They started me on 10MG twice a day (insurance only covers 10mg per day). I was feeling exceptional from this point until reduced to 5mg and started to experience the prickling pains in my back again. I am in for factor 8 testing. I suffered something during the clot that Drs seem to be turning away from. A pop and loud crack which dropped me to ground was a severely painful occurrence. since then, from my knee to the junction of veins just under calf have been very painful at times. now my Apts are spread out and I still am in pain with very brief answers.

I see a therapist twice a week to help with emotional stress, paranoias, and fear of doctors due to factor 8 antigen testing that is reactively very new. I am sorry I am irritable at times, however, if you have ever had the embolism as I did and that you stated, everyone would want to know more and then, possibly we would see the commercials discussing the treatment and the rarity of the disease. I would sign up to be the poster boy to advocate this completely. I would scream loud in efforts to advance healthcare.
this is a small portion. I have been through a lot with doctors. If a Heathcare provider from Mayo would like to speak to me. please feel free to reach out.