Multiple Sclerosis Tightness in Hips

@information Is the tightness something new for you? What does your doctor say about it? I have been unable to find other members who specifically mentioned hip stiffness, but I’ll keep looking. I would think that some PT would be best to loosen the hips.

Perhaps you can find stretches to do daily to retain flexibility and strength. Water exercises and physical therapy stretches can help. I do not have MS, but I find that piriformis (large muscle from buttocks to leg) and clamshell stretches help. So do hamstring and hip flexor moves. You can find them online (I like Dr Jo's videos), but a few sessions with a physical therapist can ensure you are doing them right and maybe target them to your needs.

@information, welcome back! I added your discussion to the Brain & Nervous System support group here: https://connect.mayoclinic.org/group/brain-and-nerve-diseases/

You may also be interested in connecting with other members living with MS in these active discussions:
- Recently diagnosed with Multiple sclerosis
https://connect.mayoclinic.org/discussion/recently-diagnosed-with-multiple-sclerosis/
- Multiple Sclerosis (MS) - please introduce yourself
https://connect.mayoclinic.org/discussion/multiple-sclerosis-ms-please-introduce-yourself/
Fellow MS-ers like @frattmaa @tedjones77494 @medmis @kgrainger @seanmay23 @nightops @tabuschlen @kathl @lemartin417 might have some tips to share about dealing with tips hips and MS.

@information, when were you diagnosed with MS?

@information biggest tips I can offer are:

Find a neuro you can trust
Check out YT videos by Dr Aaron Boster
Exercise at least 30 minutes a day, 3x week
Decide how much you are willing to risk in side effects of more highly effective DMTs to put as hard a stop to relapses as possible
Do not focus on what you have “lost” with MS, stay focused on what you still have and can still do
Stay positive
Try to cut corn/soy/dairy/gluten as much as possible
Get outside and get sunlight, and take vitamin D supplements (4000iu daily)

The last 2 are a bit subjective, but they absolutely cannot hurt.

There are some really exciting treatment strategies that are coming up in the next few years. Personally the BTK Kinase inhibitors look very promising. Remylenation therapies are in the works.

In the end, nobody can tell you what your specific MS journey looks like. Give yourself permission to get depressed, get upset, etc - but then bounce back and fight like Hell to be as “normal” as you can.

I have this in my upper arms and throughout my legs. I was hospitalized recently for it. I was frustrated in the hospital, to say the least, because it seems that as "highly-skilled" as you'd think a Doctor should be, especially as a Hospitalist, would mean that you'd be released with the root-cause analysis results. It was my usual circle -- Neurologist says I need my Spine Surgeon, Family Medicine says I need my Spine Surgeon, Urologist says I need to go to Spine Surgeon and so on...While hospitalized, I received 10x the normal dose of methylprednisolone for 4 days intravenously. It did nothing for the excruciating muscle spasms. My sodium levels were low but they gave me so much IV fluids that I began to feel like I was being smothered by fluid; I asked them to stop it OR give me furosemide. They added furosemide. Every Specialist wants to blame all of my symptoms (including but not limited to) muscle spasms and no reflexes due to my lumbar spine issue. I was released from the hospital with a few days of pain meds and told to reach out to my Spine Doc and PCP within the week. Horrible.

Does anyone experience muscle stiffness, cramps (spasms), aches, throbbing pain that comes in spirts like contractions? I did manage to change from Methocarbomol to Baclofen which is helping but I'm having to take more and more on the really bad days. Any thoughts? experiences?