I am newly Diagnosed with MGUS.

I am newly diagnosed as well by having a fluke appt. And my neurologist wanted to test more than what my primary did...sure enough MGUS 2.04. I worry...been 2 months trying to get in with a hemotologist....

I was diagnosed few years ago with MGUS also.
I go to a hematologist/oncologist for labs every 6 mos.
As long as my results stay as they are, I’m doing well and having no issues.
Just need to do bloodwork when they order it.

My doctor just told me I have MGUS at 61.5 years old. My mind is spinning and I am scared and confused, My mother lived to be 87 and I had planned on 90! They said online MGUS could be due to pesticide exposure, I never used pesticides in my yard or gardens because it might affect my dog's health. I am not of African descent or over 70 or a man. All my other tests are normal and my bone density test said I had the bones of a 20-year-old!
Is there a diet to follow or foods to avoid?

How about your diet. I found myself overwhelmed at a grocers and was not myself. There is so kuch info out there....
Uugghhhh....

There are some clinical trials going on now that address possible ways to avoid progression:
1. Plant based diet
2. Taking a certain antibiotic ( can’t remember which one)
3. Curcumin/turmeric supplements
4. Taking Metformin (used for type 2 diabetes)
5. Chemo trials for really high risk or symptomatic (?).

I’ve read that losing weight or staying at a healthy weight is best. (Duh!)
Some people are trying the plant based diet and/or adding curcumin/turmeric supplements on their own.

No one has mentioned diet or any meds that I should be taking.
Where did you learn of these you mentioned?

Yes- felt exactly the same- the mental part has been a real challenge to be honest. Some days are better than others.

Are you seeing a hematologist? I was diagnosed about 10 months ago at age 72. My hematologist says the ratio is the most important and rarely does it progress.

I am a long time myeloma patient. 15 years, 2 stem cell transplants, have been in complete remission since 2014. A few years ago I developed mgus of a different type from my original myeloma. My hematologist, a well known expert from Mayo Clinic, told me not to worry about it, lots of people have mgus and it never develops into treatable disease. I thought I’d be higher risk since I already have had treatable disease, but nope, she still thinks it’s just a situation to watch, along with my “regular” myeloma.