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Treating Osteoporosis: What works for you?
Osteoporosis & Bone Health | Last Active: Sep 2 10:11am | Replies (1085)Comment receiving replies
@dolan, gailfaith here.. Recently I have gone from osteopenia to osteoporosis, and my Dr. has but me back on Alendronate for another year. Do you happen to know what your numbers were when you had all your fractures? And you certainly had your share of them. In other words, how low do your numbers have to get when you start to experience fractures? I realize fractures can happen regardless depending on the severity of the insult to your bones, but did all your fractures occur within a short period of time or over years, including before you were Dx with osteoporosis? It seems from CONNECT that several people have had a good response to Forteo and I am wondering if maybe I should ask my Dr. the advantages of Alendronate over Forteo. I have fractured both wrists from two separate falls, many years apart, but they occured while I was only DX with osteopenia or even before that!.
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My 1st fracture was my T9 vertebrae in my back. I was playing volleyball and raised my arms above my head. I didn't jump, fall...nothing. I was 35. After going to PT from July 4th(date of incident) to Sept 10th(date of diagnosis of fracture)...I was given a DEXA scan. My numbers were -4.7 for hip and -3.8 for spine. PRE-menopausal too. My clavicle was from grabbing the phone quickly as to not wake my husband who had had surgery. It was 3am. My ribs were random coughing, sneezing..and lastly my pelvis was falling (fainting). Between those times I had been on meds for the osteoporosis and then diagnosed with System Mastocytosis in 2003. Because I had 35% extra mast cells in marrow(by bone marrow biopsy) they are not as strong as they should be for age etc. I was on a 'drug holiday' at the time of the pelvis fractures because I had started so young on meds the doctor thought I needed a break(pardon the pun). I then was put on Prolia. Hopefully in Dec I will have the DEXA to tell me what that has done for me the last 3 years. My endocrinologist suggested I may go back to Forteo as it worked very very well for me.