PSA after 20 Proton treatments

If they deem I need ADT therapy I might as well look for a nursing home at the same time.

That was me to on Zolodex Then PSA up to 4 MRI and PET scan showed mets in L1 and T 10 11 of spine 2 years later
L1 radiated I declined Xtandi then. Radiation oncologist said I was cancer free but like diabetics had to be controlled as still considered Stage 4

Another year Jan 23 PSA to 9.8 so scan showed L2 now with 1 inch so on Xtandi and Xgeva Working PSA 1,7 feel great Would not radiated as too close to L1 weakened

Take 1200 mg of Calcium Plus daily No grapefruit or pomegranate on these pills

When you had the follow up PSA testing was that done at Rochester or locally?

DECIPHER is a genetic test of your biopsie cancer. It determines if high, intermediate or low risk of metastasis. I don't think it is used much as is very expensive. Mayo does not do the test. They take the biopsie cells and are shipped or somehow give the lab that does the DECIPHER.

In addition to Mayo giving me the results the DECIPHER testing institute did state if insurance did not cover the test they had speical pricing based on your income. Mine covered it.

What I had was Proton Pencil Beam. It is a narrow beam technology that limits secondary radiation as well as stopping at prostrate and not continuing through body like Photon does.

It appears you had a high dose treatment and a lot less treatments than I. I had some and still have some side effects but no medication or treatment needed for them. I have not had a post PSA test yet. They do it at post 3 months. Then every 3 months for 1st year, then every six months for second year, and not sure what after that.

Again thanks for you information.

What are your post protonbeam drugs ?Did they prescribe any?

I did not go on any medications. They were many ongoing questions and inquires about being able to empty bladder, urine flow, any bleeding, pain, etc. to determine if I needed to.

I did have side affects (urine flow less, more frequent, velocity, dribbling) but not sufficient for medications. They are slowly improving after treatments stopped. I did have a urine test as I thought my urine looked and smelled funny but all came back negative and normal.

I was asked to stop taking any antioxidants 2 weeks prior to treatments, during treatments, and for 2 weeks after. Their research showed that antioxidants do help protect cells from damage. Problem is their protecting the cancer cells as well.

Two weeks after treatments I went back on my supplements. Too many to mention but main ones were: fish oil, zinc, saw palmetto, resveratrol, co-q-10.

I am now 125 days post SBRT Proton radiation at Mayo Phoenix, and I had the 5-treatment protocol. My 3 month PSA reading was undetectable, and it was down from 2.9 PSA when I found out I had PC. Very pleased with my results and no side effects.

Very good! Hope I have the same results with my 20 treatments which were at a lower dose. Could not do the 5 treatments since they failed with the Space gel placement. Anyway, my treatment ended in May. My post treatment PSA in July was 1.99. I will get checked again in October. Onward!

The oncology nurse said to schedule in 6 months for a follow up PSA since I was undetectable. The only regret I had with the gel was my doctor insisted I get knocked out. So far, no urinary or bowel problems at all. I just hope the radiation works as there is not a whole lot of long-term data on the 5 treatments. If I get 15 years, I will be 89 and something else will have probably killed me anyway. There is a whole different attitude towards the PC when you are older compared to someone in their 50's.

My 21 treatment program finished July 13.
PSA of 17.5 on June 6.
Gleason 4+3.
I chose to forgo hormone therapy.

I had a PSA test today Sept. 29 (2 and a half months after the end of treatment) and the PSA was 4.33.
Doc said given my high baseline number, this result was decent.
He said it should go to between 1 and 2 over the next 5 to 9 months to be considered a success.

I started a new thread on this topic a few days ago not realizing that this one was quite recent. Best to keep most of info on a topic on the one thread I think. Many thanks to the people who posted on my earlier thread.

Wow the feedback on PSA after treatments is very wide. Seems the high dose lower amount of treatments comes back with lower PSA after last treatment.

I went from 3.75 to 1.2 three months after last treatment. I am told the prostrate is still very irritated and will take some time to get a base PSA to use for diagnosis graphing. My oncologist team said if you have drop of half of your PSA after 3 months is considered good. I guess my next one will be more informational as my side affects continue to improve.

But sure wish mine had came back like some posting undetectable. But 20 years ago my PSA was always .75 year after year so maybe should be more happier with a 1.2.