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Treating Osteoporosis: What works for you?

Osteoporosis & Bone Health | Last Active: Sep 2 10:11am | Replies (1085)

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@junegreen

You are young to have osteoporosis! I encourage you to pursue why you do. Same with me and eventually found out it can be a symptom of other disease. In my case something called CVID or common variable immune deficiency. Good luck!

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Replies to "You are young to have osteoporosis! I encourage you to pursue why you do. Same with..."

How do you get your general practitioner to pursue further testing? Before I begin medication I want to know why I have osteoporosis based on a DXA scan only. She did a thyroid hormone function test ( 1.02), a celiac disease panel (negative) and a 25 Hydroxy Vitamin D (46 ng/mL). I live where there are not specialists for osteoporosis. Any thoughts? Thanks!

I was diagnosed with CVID, Hypogammaglobulinemia 5 Year’s ago and am infusing immuglobulin at home once weekly. I was Osteriopenic in 2012 but rapidly turned to Osteperosis by 2014 at age 54. I refuse to take biophosphates. I have tried to research the relationship of osteoporosis with CVID as I believe CVID has had a direct impact on my bones. I have found little correlating Documented studies or information. As most Dr,s today have no idea about CVID (I have to educate most of my dr,s) my Endocronologist agree’s my theory that if My bones work “overtime” producing more “B” cells in attempt to compensate for the sluggish non-maturing ones that possibly this overwork and production is depleting my bone health. Tho unfortunately she has no education or experience with CVID so she doesn’t understand how to investigate further optional ways to look at the treatment, cause and or effect on osreoporosis. You mentioned above that osteoporosis is your reason (or symptom) of CVID. Can you share where I can find research on this. Can you share how you have confirmed this and explain the correlation? I am urinating excessing amounts of Calcium (40%). Standard for woman is less than 20%. I did the 24 hour urine twice as my Endocronologist could not believe the massive loss of calcium. She tried me on a dieuretic but my body just rejected it and I became violently ill. My bone density is 3.4. Any information would be greatly appreciated! Thanks!