← Return to Fibromyalgia Was the most chronic pain you could imagine.

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@rwinney

I'm sorry you have such pain flares from the nerve, it's not easy that's for sure, but sometimes you have to march before you feel like it and move your body to prevent deconditioning. Like mine, your nerve pain is likely is a condition that is not going anywhere. "Hurt does not always equal harm" - I learned that phrase from Dr. Sletten of Mayo's Pain Rehab Center in Florida and it really helped my mindset and allowed me to focus on self-help and being an active participant in my care. Since, I've been able to quiet down CPS aka CSS (Central Sensitization Syndrome). Finding ways to strengthen your muscles around the surrounding area helps counter punch that pain, whether it be from Fibro or CSS, it's all pain derived the central nervous system. Also, because of the toll chronic pain takes, it's important to strengthen our minds through therapy and behavioral changes in order to find the better overall life quality. Reducing chemicals (meds) and hurtful procedures like injections and ablations which for some, create hyperalgesia (more pain) and it's like adding fuel to the fire. How are you working on coping mechanisms and acceptance? It's so important in an overall care approach. This can help with sleep and digestive problems as well. Losing muscle happens when there's pain and we instinctively think we should not move to protect the site. Not true. Might you enlist the help of a physical therapist to help show you the proper way to begin strengthening through gentle stretching?

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Replies to "I'm sorry you have such pain flares from the nerve, it's not easy that's for sure,..."

You are so correct. I feel terrible and weak and the sofa looks and feels too good. I have thought about asking my PC for a PT referral; will see him 8/15/23. If my occipital nerve is going to continue to get worse, I will not do well bc it’s about as “worse” as a human can stand. I fell hard onto stone floor onto my left side in 1981 when 8 mos pregnant. I think and drs think this fall shifted my neck ever so slightly in the occipital nerve area. I went 20 Yrs after that fall without having any symptoms or signs of bone spurs however. Maybe it took that many Yrs for bone matter to build up to cause angry nerves.
TU for urging me to get PT!!