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Fibromyalgia Was the most chronic pain you could imagine.
Fibromyalgia | Last Active: Aug 13, 2023 | Replies (59)Comment receiving replies
Hi rwinney, I’ve never had an ablation but I did have an injection of lidocaine on the trunk of my left occipital nerve tree (a block) in 2018. That night I slept on my Rt side and some of the lidocaine and Bupivocaine seeped to center, Rt side and down into C6 and T1 area, and I guess the best word to describe what it did to the tissues there is “scalding”. Since then I have progressed to Central Pain Syndrome also. Pain builds more pain as u, I and many others have learned. Do u think the pain of the burning of the nerve caused u to progress to CPS?
My Occ nerve is so sick and so painful that it is impairing my general health - my adrenals are worn out, I’ve lost lots of muscle all over, I have messed up digestion and sleep. Fatigue so easily. I am unsure what is the rt thing to do about that nerve. God bless you and everyone who is reading this 🙏🏻
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I'm sorry you have such pain flares from the nerve, it's not easy that's for sure, but sometimes you have to march before you feel like it and move your body to prevent deconditioning. Like mine, your nerve pain is likely is a condition that is not going anywhere. "Hurt does not always equal harm" - I learned that phrase from Dr. Sletten of Mayo's Pain Rehab Center in Florida and it really helped my mindset and allowed me to focus on self-help and being an active participant in my care. Since, I've been able to quiet down CPS aka CSS (Central Sensitization Syndrome). Finding ways to strengthen your muscles around the surrounding area helps counter punch that pain, whether it be from Fibro or CSS, it's all pain derived the central nervous system. Also, because of the toll chronic pain takes, it's important to strengthen our minds through therapy and behavioral changes in order to find the better overall life quality. Reducing chemicals (meds) and hurtful procedures like injections and ablations which for some, create hyperalgesia (more pain) and it's like adding fuel to the fire. How are you working on coping mechanisms and acceptance? It's so important in an overall care approach. This can help with sleep and digestive problems as well. Losing muscle happens when there's pain and we instinctively think we should not move to protect the site. Not true. Might you enlist the help of a physical therapist to help show you the proper way to begin strengthening through gentle stretching?