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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: 3 days ago | Replies (308)

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@becsbuddy

@liztbnr What a nightmare for you! I’m going to send you some articles that talk about treatment. (maybe I already sent them! Who knows!)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6472233/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6410928/. Links look the same, but they’re not
I took similar articles to my doctor and said “I want these drugs”!

I have more articles. I’ll try to find some not-so-scholarly ones.
I have my fingers and toes crossed for you.. keep me posted about your meeting in August,OK?

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Replies to "@liztbnr What a nightmare for you! I’m going to send you some articles that talk about..."

Barrows in Phoenix is world-class. My NP and my neuro will not touch an alternate drug. The neuro says he has no knowledge of clippers or the alternate drugs which he is wary of, due to their cancer-related tendencies. And my NP is just plain skittish. Mayo Scottsdale dropped me due to new billing policies (no Medicare retiree medical plans, only pure Medicare). Which is no big deal, because the neuro there had zero interest in clippers, and gave me a base medical exam and re-prescribed pred. He saw me twice a year. So, cannot demand any alternate drug, not going to happen in AZ, especially Tucson. Will see what happens with Barrows. Yikes. liz