The saga continues. GARD informed me that there zero medical people in Arizona who have anything to do with clippers. I went to one six years ago, but was all about continuing with prednisone, period. At the time, I was doing fairly well on it. Fast forward to seven years later, and I am deteriorating. So, I set up an appointment with Dr. Din, and he informed me that he was a general neuro, and could not help me with alternative meds. The more he backed away, the more I cried, I was so hopeless. This was not a ruse, but it seemed to touch him, and he said he would help me find a solution. I had bloods drawn for immune markers (three vials!), and he is going to get with radiology to get me a fresh MRI to see where the brain is. Then, we have a follow-up appointment late August, where we will talk of steps to proceed. Barrows in Phoenix is apparently very highly recommended, so he is checking with them first to see if they can/will see me. He is doing the medical legwork to get me help. Tucson is a dead space when it comes to clippers. Hopeful, not 100%, but we seem to be going in the right direction. Fingers crossed. liz