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Has anyone stopped taking camzyos? I have stopped and feel very sick.

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 29, 2023 | Replies (40)
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@quinn

I ran across an excellent series of posts about who to contact for patient services and where to stay and eat while in Rochester but of course now I can't find it. Thought I would look at those posts this weekend since I can't contact the RN or docs. Please guide me to the right threads when you can.

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Replies to "I ran across an excellent series of posts about who to contact for patient services and..."
Debra, Volunteer Mentor | @karukgirl | Jul 29, 2023

Hi @quinn, I will poke around and also ask others for guidance where to find the information we are looking for. Then we will both know!

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Colleen Young, Connect Director | @colleenyoung | Jul 29, 2023

Hi @quinn, I think you may be referring the the Visiting Mayo Clinic support group here:
- Visiting Mayo Clinic support group https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/

In this group, members share their tips and experiences at Mayo Clinic, including helpful things like accommodation recommendations, restaurants and things to do while at Mayo. You'll also find help with downloading the patient portal, how to prepare for your first visit, and so much more.

Go to the group and use Search to help you find discussions related to your questions. Can't find your question answered? Then don't hesitate to ask it. @karukgirl @johnbishop or many of the other members here will help you find what you're looking for. 🙂

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