I am on traditional medications prescribed by my Rheum & Neuro - both of which piggyback on each other’s “we’re managing the symptoms but according to your body weight, these doses are as high as I’d prefer to go” - which I’m completely ok with! I do not take strong pain medications (such as the well known painkillers - Percocet, Vicodin, etc etc etc) - just the Gabapentin and Lyrica which MAY help some, but neither of which seem to touch this “one & done” task ability or the extreme sensitivity I feel every day in the late afternoon/evening until I go to sleep.
I do a lot of stretching & use a massager (mostly on my neck/shoulder/head/face). I see my chiropractor weekly, which although he’s not “certified” (if that’s a thing?) in the holistic field, but he is a very big supporter of that concept. My adjustments, especially when my neck cooperates, are immediate relief… but as the day goes on, it all returns once again. I’ve seen him for over 10 yrs so he’s seen the progression of all this firsthand - we’ve even done rounds of supplements & diet detoxing to support the gut health which ultimately can have a direct impact on every other system in my body. All to no avail with major change in symptoms. He’s even gone as far to suggest that things seem so similar to his colleague who had Lyme Disease when she was in her 20’s - but her symptoms did seem to go into remission for the most part so are nowhere near what mine are now, which puzzles him.
I have also tried acupuncture & massage, which are wonderful as I’m laying there on the table, but unfortunately the effects don’t last & it’s like the moment I leave the appointment, the symptoms all slowly return throughout the day.
I continue seeing my mental health professionals who have introduced some of the other functional medicine techniques such as tapping & meditation but am yet to see the consistent relief with those either. 🙁
Hello @raepent1, I'm Rachel, it's nice to meet you. I see my Mentor friends, Sue @sueinmn and John @johnbishop have offered their help already, and while I don't want to overcrowd, I have a ton of thoughts after learning about your health conditions, obstacles and derailment of life. I want to start by saying I hear you, I see you, I've been you, and most importantly I want to support you based on similar experience. You have such a wonderful mindset and outlook which is truly something to build from.
Your bio tells me a good amount - "I was athletic, energetic & go-go-go all my life. I work(ed) in a mgmt role = maximum multi-tasking, never-ending stress & getting too much both mentally & physically while learning to navigate my new “normal”. This makes me sad because it sucks to not be that go-go-go'er anymore and have exhaustion from sorting laundry and being a one and done tasker, but you are not alone. My life began drastically changing from corneal disease and neurological chronic pain conditions like SFN and Central Sensitization Syndrome when I was 43, and by 46 I needed to walk away from my job in management. Everything changed.
Would you say you have gotten to the point of being properly diagnosed and treated, and are now trying to figure out how to live your "new norm" the best way possible? To find quality of life even though it may need to be reimagined?