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@susanfalcon52

Does anyone have experience with pelvic floor disorder and pelvic floor physical therapy?
I am currently dealing with both and symptoms are confusing.

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Replies to "Does anyone have experience with pelvic floor disorder and pelvic floor physical therapy? I am currently..."

YES! I have pelvic floor dysfunction—pelvic pain/spasms and urinary hesitancy and intermittent constipation that very much improved with pelvic floor physical therapy.

I’m not sure if you’ve started yet, but my #1 caveat is that you need to find a therapist who is a good fit. Otherwise, like with most PT, but especially in this case PT can and will harm more than it will heal.

Second thing is to try to be informed because I found physicians can be kind of weird about explaining what pelvic PT actually may entail. I have a history of trauma and it was essential for me to know what to expect and to have a therapist who understood that.

Were there specific things you wanted to learn more about that others might be able to help with?

I have been having PFPT after colpocleisis on May 4 and it has helped enormously. In addition to the exercises, the therapist does internal scar tissue massage, which caught me off guard but I trusted her and allowed it. What a terrific improvement in the way my bladder and urethra worked. Find a reputable pelvic floor therapist who's affiliated with your doctor and try to trust in the process. Good luck 🤞

My journey with pelvic floor dysfunction started when I had what I thought was the worst uti of my life. I went to an urgent care and they sent me to an urology clinic. The clinic sent me to a uro-gynecologist. She was wonderful. She suggested that I might have a Tarlov cyst which I had never heard of. Turns out (mri) I do have a Tarlov cyst. She said that I needed estrogen cream an PFPT. So, I did that and my symptoms went away. I became non-compliant after awhile and symptoms returned.
Being a slow learner, I went through process all over again.
Twice. Now, I’m a believer and realize that I must use estrogen cream and do the PFPT exercises for the rest of my life.
My questions are regarding which of my symptoms are related to the pelvic floor dysfunction and which are something else. I’m worried that it is the Tarlov cyst which is on my tailbone. Although, compliance with estrogen and exercises always helps.
Symptoms vary, but include pain, itching, involuntary genital arousal, burning.
Thoughts?
Sorry for long winded post.