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DiscussionPN giving me terrible tingling and electrical currents head to toe st
Neuropathy | Last Active: Dec 14, 2023 | Replies (31)Comment receiving replies
Replies to "Hi there - thanks for your response. I'm stubborn and hate taking all the medications I'm..."
Don’t think that’s stubborn. If you can avoid drugs it’s always best. I’m trying to take as little as possible. I’m grateful that I don’t have a bunch of other maintenance meds I have to take. Have you figured out what is causing your symptoms?
I hate to take meds too, but it's the only thing can get me through the day without succumbing to fear and despair. In a 24 hour period, I may have to take flexeril for chronic muscle spasm in my neck/shoulders, norco for generalized pain and gabapentin for nerve pain. I have had several MRIs done, emg/ncs test, all kinds of blood and urine labs done - all come back normal. I think the neurologist took me seriously, but his effort to refer me to UCSF was declined because of my insurance. He did say that gapapentin is safe and people can take up to 3600 mg a day!! He also said that you take it every day, not just as needed. So I take 900 mg every night, but it's only masking the electric shock sensation coursing through my body 24/7. I'm 64 and have been able to stay off meds for the most part, until now. And now I feel like a junkie. I hate to think what it might be doing to my kidneys and liver over the long term, but I also wonder how long I may survive with whatever is going on in my body, that the doctors can't seem to diagnose and treat. It's so frustrating.