Rose,
I started the Big 3 (Azithromycin, Ethambutol and Rifampin) EVERYDAY in January 2023 and have had no side effects yet. I continue to get my eyes and hearing checked every 2-3 months. I went to NJH in May and they added inhaled Amikacin 3 days a week to the mix because I have a cavity. I will return for a follow-up in November. I am hoping they will cut the meds back to 3 days a week but not sure. My sputum samples have been Negative since February which I am keeping my fingers crossed so I can make it for 1 year and then maybe get off the meds.
I also nebulize 7% Sodium Chloride and Levalbuterol twice daily while using the vest. You mentioned the restless leg syndrome and I am experiencing that as well. I wasn't sure if it was my sciatica nerve or not.
I wish you the best of luck and just know we are all in this together.