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← Return to Rifampin side effects
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I am on the 3 antibiotics ethambutol, Azithromycin and now taking clofazimine. Originally i was on rifampin. 3 times a week.
The rifampin after about 9 months started causing joint pain in my legs snd body while sleeping. The pain was so bad it would wake me up and I would feel like fainting. Weird.
I went to national Jewish health in denver snd they found it was drug induced lupus. They stopped it and replaced it with the clofazimine. Pain has gone away. I also have fatigue and bad stomach issues with all the meds. Now i have diarrhea they day after i take drugs. All this meds are strong and hard on your body. I have been negative mac since last September. I cannot wait to get off of them in 2 months.
My sputum is negative now but my ct of lung still shows nodules. I have nodular bronchiectasis and that doesn’t go away. Will be getting checked all the time for that. I had neck cancer so nodules in my lung need to be checked that they are not cancerous.
Its a long treatment and for me the side effects are not easy but i fought it.
Now i pray that the air clearance with aerobica and saline will keep the mac away.
If it comes back which i was told it could. Not good to hear that. I don’t know if i will do meds again.
Hope you feel better and get some result soon.
Miriam
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Thank you so much for that information. You really did fight it I give you a lot of credit for that and everything else you have been through. Thanks so much for taking the time to let me know.
Right after I posted that my brother who I have been helping fight his bladder cancer at Shands hospital had an accident with his scooter and before we even could find him they did surgery and he didn't make it, so I have been working on all his stuff now plus I don't have him here anymore for advice. He was awesome and my best friend. I don't have any nodules or bronchiectasis, so they say. But my infectious disease dr. says I have to take these for 2 years every day. They are killing me so if he doesn't do something different, I am going to try to go to Mayo in Jax. I have to find out if they accept my insurance first. It just seems to me that others with much more damage are only taking them 3 times a week and as you say are able to stop after one year not two. I have an appointment on Tuesday coming up so I will see what he says. His nurse told me if I dont take them everyday I will build a resistance to them. That doesnt sound right either. So heres hoping I get better answers soon, but Thanks again for your help.
Rose