Hey, yes! I have been having like every Neuro symptom… My eye doc says she can’t really see any concern, but I did get my first eyeglasses prescription ever December of 2021. And my vision is getting worse, but my eye doc still doesn’t see a cause. She has offered to refer me to Neuro-Ophthomalogy, which I will follow up on. I currently have very high viral loads of EBV, JCV, and my herpes varicella zoster viral load is high-normal. I recently had a staph infection too on my legs. I am not on immunosuppressants, no diabetes… I am being worked up for CADASIL and MS. I see a Neurovascular doc Tuesday. My brain MRI is messy and progressively so. I can’t talk sometimes. I forget where I am. I get dizzy. I fall. I have gone to the ER. Lots of docs this year… Lots ruled-out and I’m currently being worked up for MS, CADASIL, and microangiopathy-long road… Waiting on results from my second LP this month. Not sure we’re headed down the same path, but any info helps! The brain and immune system are tricky!!! 🤗 I too am doing what I can in the meantime, Pilates (I have no energy or muscles left, I’ve lost 80lbs and counting this year), acupuncture, cupping, massage, Psych NP, counselor, Registered Dietician-I realize my privilege here thanks to my husband’s health insurance, I just had to resign from my job as a nurse of 14 years at Children’s Hospital Colorado 😓 Just 10 minute walks around the block (with my donated new friend Walker 😜) really gives me a mental boost. And just being open, receptive, staying true to me, and giving back. I’m not going to lose Me just because of this crap 🤗🤣 Look forward to following you through your journey!
I do see a Cardiologist too. Abnormal ECG, tricuspid and mitral valve regurgitation, but not concerning for now-annual monitoring is all. I am a 39 year old born female sex. My brother had his first stroke at 44, my dad died at 53 from cardiac arrest (had congestive heart failure)-and his dad and grandpa died even younger than he of cardiac arrest. Lots of dementia and stroke and blood pressure stuff on mama’s side. Keep in mind, there are a lot of details I haven’t mentioned, so make sure and dig deep when researching! 🤗 Happy to answer any questions too of course!