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Treating Osteoporosis: What works for you?

Osteoporosis & Bone Health | Last Active: Sep 2 10:11am | Replies (1085)

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@dolan

I totally 'get it'. I had broken ribs sneezing, broken clavicle reaching for the phone...The shock....at 35 I fractured my T9 playing volleyball on July 4th. Really I was only raising my arms above my head. After multiple weeks of therapy and little relief of pain and back spasms I saw a spine specialist. He took an X-ray (1st one) and I found out about the fracture (Sept 10). I had my initial DEXA scan with -2.9 spine and -4.7 hips. Premenopausal and no history of osteoporosis. Started on Fosamax daily...worked for a while then tapered off...then 2 years of Forteo (worked wonderfully and wished I could have remained on that for longer but not suggested), then Fosamax weekly....At this time I was diagnosed with Systemic Mastocytosis because of the severe numbers on my scans and spots on skin. I was sent to Mayo and saw 3 doctors, many tests and a bone marrow biopsy (having extra mast cells in bones)...causing more brittleness. My osteoporosis specialist at home gave me a 'drug holiday' since I'd been on medication for so long and at a younger age. Plus with the diagnosis at Mayo...I ended up with chemo (Interferon) 3 x a week for 3 years. Then 2 years ago I slipped and broke my pelvis in 5 spots and was told no surgery since I have 90 year old bones. So after 11 weeks began Prolia. I am on the end of my 2nd year. Really was the only thing left for me to use. Hasn't worked as well as Forteo...but could be age as I'm now 60. I have had NO side effects from any of the medications.

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Replies to "I totally 'get it'. I had broken ribs sneezing, broken clavicle reaching for the phone...The shock....at..."

so sorry for all the complications you have had to endure. I think the side effect many are concerned about is that many of the medications prescribed for osteoporosis make bones more brittle and can actually cause breakage in larger bones. Thanks for sharing 🙂