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SPK (simultaneous pancreas and kidney) transplants

Transplants | Last Active: May 16 8:41pm | Replies (77)

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@cehunt57

I had a pancreas only transplant in 2005. At that time my chronic kidney disease (CKD) was only mild - moderate and a kidney transplant was not recommended. Fast forward to 2016. My kidney function had decreased and my pancreas function was not as good as it once was. I went through pre-transplant evaluation this time for simultaneous pancreas kidney transplant. I was approved for kidney transplant but was told that pancreas transplant was not necessary. I’ve been looking for a living kidney donor ever since. Now 7 years later neither the pancreas or kidney function are great. I’m still interested in SPK but when I had a pre- transplant review this past March I was told that I’m too old. I’m 66 and apparently there is an arbitrary 65 cut off. I think my quest for SPK lost ground 2020 - 2023 during the worst of the pandemic years and I aged out! My point is transplants are a big deal. Multiple transplants even more so. Do whatever research you feel you need to and pick a transplant center you feel you can trust and will work with you as an individual. Take into account pre-transplant work up, the transplant itself and follow up. My transplant in 2005 was at a different center than what I’m working with now (Mayo). I heartily recommend Mayo (any of the main three) because I think it is advantageous to extend the network across the country. The stellar Mayo reputation precedes them.

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Replies to "I had a pancreas only transplant in 2005. At that time my chronic kidney disease (CKD)..."

My husband was deemed “ too old” for a kidney transplant at age 72. Mayo Scottsdale and our donor daughter put the kibosh on that! Not withstanding, covid, travel, etc, I wish I had asked more questions regarding mood swings, tiredness etc. I, of course thought the energy level and good humour would instantly return🤣. Not so. But 4years out, I am so grateful for the naps, the shared jokes, family and Mayo. They were tireless in adjusting meds and follow ups.
Every day is different. Allow yourself time, as a caregiver. It’s not easy and very one has a different experience. Enjoy the good days, they will become more frequent! Best wishes to you all.