Hello!
I’m glad you are going to search around for a more attentive physician. The medical school might be the perfect place to find one as they are diligent in keeping up with the literature.
The treatment of Multiple Myeloma and prologue conditions such as MGUS and Smoldering MM, has evolved over the past few years with new treatments and much better outcomes. I want my docs to keep up with that even though I sincerely hope that my MGUS stays in it’s lane.
Sadly, there is a lot of demand so it was hard for me to get an initial appointment. Hopefully your PCP has an in and might be able to help. Ask around. A former patient helped me find a hem/onc doc who listens, has a solid training and experience background and a reputation for diligence. It’s essential to have someone in whose care you can feel safe and confidence.
I get annual whole body scans to look for bone lesions. I do have pain in my feet and neck but that is attributable to other body rebellion. Aging, it seems, is not for the timid. So far, my MGUS has been mostly benign.
I’m so glad you found us! Let us know how it all turns out.
Patty

My husband apparently had MGUS for about 5 years but we didn’t really know it until his white count took a dive and then he got a bone marrow biopsy by the hematologist he was seeing. Yes he had bone pain a lot in his back and would even go and get injections. But once the biopsy was done at a local hospital that had just received a partnership with Mayo the diagnosis of MDS was discovered. At which time we then got a referral to either IU or St. Francis hematologist. He has been with these drs at St.Francis for over a year now and we have been very fortunate in his care. Please get yourself where you feel valued.