Hello John, I have Ehlers Danlos Syndrome and also have been waiting for months to see rheumatologist for lots of various pain in joints and bones. Since everything I love to do involves movement, I want to be able to continue staying active as long as possible and very interested in prevention. I am not finding the help I need from any of the Drs I have seen and it seems like the wait is always months to see any specialist and impossible to have a more compressive assessment. I think sometimes when a patient ‘presents’ as fit & healthy’ they don’t always get listened to. I was most interested in the Bones, Joints & Muscles support group and just getting a sense of what other people do who are coping with these issues.