Prolia side effects-increased RA inflammation

This is what I have been told from my doctor and have read. It should have been made clearer. A friend who was taken off of Prolia is now on Alendronate

@salisbury2491 @olderdiva12345 12345 you can actually get off Prolia but do it carefully. See an endocrinologist. I also suggest getting Keith MCormick's book "Great Bones." He suggests that rather than go by a standardized protocol to start Relcast 6 months after your last Prolia, individualize it. Get P1NP and CTX blood tests to get the timing right. If too early, Reclast won't work and you will lose bone quickly. Too late and you will also lose bone.

I have been told I can "lock in" gains from other meds with Reclast (or for some, oral alendronate) and at some point take a break from meds or even stop.

My docs don't use Prolia and also say that with my autoimmune issues, it is not a good option.

Thank you. I was told by my physician to take Prolia and I refused after researching it and seeing the side effect. Thanks for your thoughtfullness and stay well.

The discomfit has just gotten worse in the last 3 or 4 months. I am not due to another shot until in October. I have been trying to research my options now. I had been getting so many negative reports about just getting off of Prolia, even my regular doctor had said once on it, cannot get off it.

If you will refer to sallisbury she gives her opinion on how to get off of Prolia. Talk with an endocrinologist (sp?) as she suggests. Not all doctors including my own understand the side effects - maybe they don't want to get involed or are getting pay back from that drug company? I don't know. I just know that I will NEVER begin that regamin. I am sorry you are suffering and I shall now say a prayer for you to feel better.

I had my fourth Prolia injection Tuesday. I’m experiencing side effects sooner this time. Lower back pain, leg pain waking me up in the middle of the night. And for the first time I’m having vertigo upon waking in the morning, and fatigue during the day. I’m hoping I can finally have a bone scan to see if this Prolia is working to help my bones. The most bothersome is the leg pain waking me. I’m usually a good sleeper and don’t have problems. After I try to convince my doctor for a bone scan I’ll have to decide whether I should continue the injection. I’m also surprised the side effects are starting so much sooner. The previous injection usually started slowly and took a couple of weeks for me to notice the awful leg pain. I’m going to continue to just keep pushing forward and keep moving.

I’m so sorry about your side effects, especially the leg pain.
I’ve only had one injection and the leg pain was so bad
when I went walking that I had to stop every 5 minutes.
That was the only time they really bothered me, but two pharmacists I know really well recommended that I do
not continue the Prolia because that leg pain was a huge red flag. My legs still bother me some when I walk,
but as the Prolia wears off, the leg pain has slowly lessened. I’m not sure when this pain will stop. I was also told that the side effects could get worse with more injections. I’m very prone to side effects anyway,
so I made the decision not to have any more injections.
I’m doing strengthening exercises, walking, eating well and taking Bone Builder Forte,
and Calcium Citrate.
I may try another med if it is not an injection.
I’ll pray for you and please let me know what you decide.