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Are the symptoms weird?

Neuropathy | Last Active: May 2 8:46am | Replies (21)

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@ray666

Hello, robindancer5678! (@robindancer5678)

Welcome! You're not alone in wondering if your symptoms are weird. I often wonder the same thing. I was diagnosed in August of last year with idiopathic peripheral neuropathy. My neurologist didn't go so far as to say "polyneuropathy," small or large fiber, sensory or motor, but I'll be meeting with him again in two weeks when I hope to get more clarity.

My PN appears to be situated chiefly in my feet, at least for now. I'd initially gone to see my neurologist because I had been noticing how my balance and gait were beginning to play tricks on me. I've had a few falls but no serious injuries. The EMG I had a year ago showed measurable sensation loss in my feet, although without that EMG, I might never have guessed I was losing sensation.

I, too, have good days and bad days. On my good days, I can walk short distances, a little unsteady at times, but with little fear of falling. On my bad days, I'm always on guard, carrying a cane, letting my fingertips trace walls, countertops, and other stationary surfaces. I'm blessed that I still have no pain, just my alternating good and bad days. And like you, even on my bad days, I can climb on my stationary bicycle and peddle without any unusual weakness. If I try walking on those bad days, I can only go a short distance before my legs feel weak and I'm ready to sit down. Mysterious stuff, this PN!

I'm glad you posted your question about weird symptoms.

Cheers!
Ray (@ray666)

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Replies to "Hello, robindancer5678! (@robindancer5678) Welcome! You're not alone in wondering if your symptoms are weird. I often..."

I have been diagnosed with mixed Polyneuropathy. I get off balanced almost daily. I’m like a drunkard. I don’t understand what I have. I also have radiculopathy