← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@jaymaysea

My appointment ran 2 hours. My LVOT is 6 now, before taking Camzyos it was 12 resting and between 100 and 140 during my stress test. My ejection fraction is 55 to 60. It was 65 to 70 before I started the med.

I am still experiencing shortness of breath, fatigue, intermittent angina, and a high heart rate (in the 90), averaging in the high 70s even when I am sleeping. So he ordered a stress echo since the normal limited echo does not show an obstruction; but, upon excretion, there is a severe obstruction. Probably why I have been misdiagnosed for years.

I am in my 7th week. He is still hopeful that Camzyos will start to give me some relief. He talked about putting me on a very low dosage of Metoprolol to slow down my heart rate. We decided to wait until after my stress echo. I am still at 2.5mg of Camzyos. Lost the battle, but hopefully I win the war.

I am staying positive. I am going to Austin today for a Ladies weekend. All of the activities are inside. It will be interesting to see how much I can do.

Hanging in there everyone!

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Replies to "My appointment ran 2 hours. My LVOT is 6 now, before taking Camzyos it was 12..."

Thank you for the update! I am on 50 mg of Metropolol. I hope you have a fantastic weekend with your friends! 🙂

You need a weekend away from all this hoo-ha! Enjoy your time. I hope they get this all straightened out for you...it's got to be stressful wondering and worrying if this is going to work or not. You hang in there too!