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My Experience on Evenity for Treating Osteoporosis
Osteoporosis & Bone Health | Last Active: 1 day ago | Replies (1085)Comment receiving replies
I never heard of Tymlos til seeing I this site last night (I had signed up but somehow never accessed it) So far I am trying to do this drug-free but I know that may be dreaming - my ex sister in law just had her first Reclast the other week, she is in her mid 50s and she pointed out to me that if weight bearing exercises even prevented osteoporosis much less reversed it she never would have gotten it, she's worked out w a trainer for years , plays tennis, fences, skis, runs. It's like the perfect athlete and there she was with a bad bone density test. And yet the side effects so scary - I get dizzy from more than 3 days of anything, otc non-steriodals, Tylenol, so when people mention tinnitus i worry that these drugs affect ears and even if they don't cause the jaw necrosis I'll be dizzy.
It is interesting that you mention Forteo tho. My aunt did that for years - expensive, put her in the donut hole - but a couple months ago I was having a tooth (that had a graft, exactly what you shouldn't do while taking the drugs) being checked by a new guy in my periodontist's practice . Told him my problem. He said you can take Forteo, it doesn't do that. My regular dentist at one point said do none of the new drugs, their half life is longer, just do Fosomax so you can stop taking it if you need a treatment.
I will look up Tymlos.
I am right now feeling dumb because I realized I got my dx at 62, that was only 5 years from menopause for me, I should have done HRT , I would have had a few years to build up bone density before it was too dangerous (although got BC at 66, would have of course blamed self even more if I'd done the HRT the prior 3 years ha ha).
THANKS for response. It is such a dilemma. And now I see a Margaret Martin video that says the way I've been doing squats - holding my 4 pound dumbbells in front as I squat - -is all wrong, that I'm putting a fracture causing load on my vertebrae. You could spend your life trying to find the answers to this.
Replies to "I never heard of Tymlos til seeing I this site last night (I had signed up..."
Sal462- Do not be dismayed, have you done any serious investigation as to your potential root causes of your osteoporosis?? There are many, and if you figure them out and can address them you could potentially improve your status. Check out Bone Coach , Kevin Ellis and his team, another person to try to get hooked up with is Margie Bissinger, she does a lot of podcasts related to just these very things. Earlier this year , late March into April , Margie Bissinger offered a free week long, and I mean week-7days- of experts in the field of osteoporosis from their own specialized vantage point. The symposium was titled -“More natural approaches to bone health and osteoporosis.” There were ~9 half hour to hour lectures offered each day . I learned so much and through it got acquainted with many of their names. They all gave their websites, offered resources for free information , etc. Just wonderful. So glad I tripped over that. It’s been a god send it terms of understanding and having a different perspective. Keep your eyes peeled because it was her 2nd symposium she had done for osteoporosis and I anticipate she’ll do a 3rd annual one next year!! Actually , some of her podcasts are from the same professionals that presented at the symposium. Keep working to figure this out!!! There’s still hope. But do realize that it’s so much easier to maintain density than to build it once it’s low especially the older you get.
Good luck to you and all on this site!!!!
@sal462 Tymlos and Forteo are similar, and both work through the parathyroid. I was able to tolerate Tymlos because, unlike Forteo, the dose is adjustable. The pen has "clicks" and I did two and worked up to 7 for my 18 months and am now doing a few months at full dose of 8 clicks.
I am sensitive to meds and this worked for me since it gave my body time to adjust. The side effects are worth it versus fractures, which I already have, and with ramping up, the side effects have been very tolerable.
Doing Reclast or Prolia before Forteo or Tymlos affects the effectiveness of the bone builders. Sequencing properly is important but insurance companies need to catch up with the science!
Margaret Martin is wonderful and yes lifting weights in front of you really strains the spine! I say that from hard experience 🙂
Don't beat yourself up! We all our doing our best and it is so hard with all of the options available and not knowing what is right for your body? I did HRT and ended up with breast cancer and advanced osteoporosis. I also have dental issues so I can't take hardly any meds for osteo except Forteo. My parathyroid levels were high so I can't take Forteo until the PTH is normal. I had parathyroid surgery and my levels are still high. Really tough. Not sure what to do?
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Tymlos is similar to Forteo in the way it works and does not cause dental issues. Some of us sensitive folks prefer it because the injection pen has "clicks" that allow us to adjust the dose. So I started with 2 out of 8 clicks and moved up to 6 or 7- a partial dose- and I still have excellent gains. For the last two months I am doing the full dose. My doc loves this and is sharing with other patients.