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MGUS with bone pain?

Blood Cancers & Disorders | Last Active: Feb 10 12:28pm | Replies (36)

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@loribmt

Welcome to Connect @tellis383. I’m happy you found us too! It helps to find that you’re not alone with your new diagnosis. There are a quite a few members in Connect who have MGUS and also experiencing the similar pains that you’re describing. It’s awful when your doctors don’t seem to be taking this seriously.

MGUS-Monoclonal gammopathy of undetermined significance (MGUS) is a condition in which an abnormal protein — known as monoclonal protein or M protein — is in your blood. Usually patients diagnosed can go years without any issues but this can progress to more serious health issues.

A little reading for you.
From Mayo Clinic:
https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362
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Healthline.com:
https://www.healthline.com/health/how-serious-is-mgus#faq
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Initially, from my understanding, most patients aren’t even aware there’s an issue. But because it can progress over time, some of the changes that doctors should be on the lookout for are bone pain, fatigue or weakness, unintentional weight loss, fever or night sweats,headache, dizziness, nerve pain, or changes in vision or hearing, etc.

It sounds like these pains, brain fog and unusual symptoms are pretty recent changes for you. There are three types of MGUS, each associated with an elevated risk of certain health conditions. Knowing the particular type of MGUS can classify a patient as low, medium or higher risk for developing conditions such as multiple myeloma.

Have you mentioned this new pains and brain fog to your hematologist oncologist? Were you given a type classification for your MGUS?

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Replies to "Welcome to Connect @tellis383. I’m happy you found us too! It helps to find that you’re..."

Thank you for replying back so quickly...no I wasn't given a type classification for my MGUS, and I have informed him of my symptoms but I'm not really content with him. I am thinking that I will find a new doctor.