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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 22 2:38pm | Replies (736)
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@karukgirl

That must have scared you a little bit @kelliw when he wasn't happy and came in to show the tech where to go over again! But what glorious news! I'm glad you are doing so well and that you feel like you have your life back again! And let's not forget how blessed you are with that awesome doctor of yours too! He's a real advocate for you and rare to find...

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Replies to "That must have scared you a little bit @kelliw when he wasn't happy and came in..."
kelliw | @kelliw | Jul 25, 2023

Hi Debra-Yes it did scare me but he said don't worry I just want to be very careful with you and I'm not happy with how this one thing looked so we will do it again. He is so amazing! 🙂

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nanakpm | @nanakpm | Jul 26, 2023

You are lucky your doctor is so involved. A senior researcher on Camzyos acknowledged that it is important to have an experienced sonographer to do the echo. Because w HOCM there is contamination of the image and it’s hard to get a good reading. Great that your doctor came in to assist! And that he takes your functionality into account, not just echo results. Keep feeling better!!!

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