← Return to MDS: How to improve my condition in watch & wait?

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@jwkelly72

Why only monthly blood work ? I do have cancer and ever visit, whether weekly or every appointment I get blood work and the results immediately. My cancer spread slowly over 10 months before diagnosed properly, I was even misdiagnosed. By the time they caught it I was stage 3 Esophageal cancer and 95 pounds. I'm now 2 years with cancer and 130 plus pounds with a permanent feeding tube in my stomach. You need to take charge of your medical and get more frequent tests imo. Don't let it or them blindside you

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Replies to "Why only monthly blood work ? I do have cancer and ever visit, whether weekly or..."

My diagnosis is Myelodysplastic syndrome. And based my current blookwork, I am in the low risk category, whihc implies a 75% survial of more than 10 years: pretty good. But I am anemic as well as immunocompromised.I am too old for a stem cell transplant. That, and blood transfusions could result in infections, and the blasts cells to accelerate. In other words, I am ok for a while, unless I get an infection. But that risk, coupled with beeing anemic, is a bit of a "pain". Nothing is simple, and all of our conditions seem to be different...