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Anyone with Narcolepsy Losing Memory?

Sleep Health | Last Active: Sep 27, 2023 | Replies (22)

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@sleepstate

The best thing you can do is be your own advocate. Learn everything you can about your condition. Keep up with the latest research and know what treatment options are out there, even those out of the box. Don't be afraid to tell your Dr what you think maybe the best treatment and ask to try starting with the lowest dose. Print out what you've been researching and take it to your Dr appts. Don't depend on them keeping up with what research is looking at. If the Dr doesn't want to listen and acts like they know it all, find a new one. One that listens, works with you, is open minded and seriously considers your input after you've shown you have done your own research.

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Replies to "The best thing you can do is be your own advocate. Learn everything you can about..."

That's exactly what I'm doing. I have advanced education in Philosophy of Science, so I'm always right on it. I've been on hydrocodone for years for a neck injury, but never thought to look at it that way. I'm a type 2, so no cataplexy thankfully. We're kind of poor too, so I get that one. I have done the "screw it" too. My wife was diagnosed with breast cancer, and I'm not going to miss her appointments and chemo while sleeping.

Thank you so much for your input. You got down to the nitty gritty, and it means a whole lot.