It's a constant battle. I've been dealing with it and on the medications for about 37 years. At this point the older cheaper medications don't work well after being on them for so long. They want $4100 a month copay for newer meds, 3 times my income. So that's out. The medication that does work pretty well I can't get at near adequate dosage. My life has come almost to a complete stop, sleeping most of the time. Every now and then I say screw it and take what I have to so I can get something done or go do something like go to the beach or see my kids. Drs would see it as abusing meds, I see it as making the choice to do what it takes to have a day of actually living. The reason the dosage is so low isn;t because my Dr thinks it should be, it's because of over regulating and bullying Dr's out of prescribing adequate medications if they're controlled. I take hydrocodone for excessive fatigue and cataplexy. It works in the brain to reverse both very well without the terrible side effects. Latest research shows how and why they work.