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Seeking other liver transplant pts out of state from MAYO JAX

Posted by nusscass @nusscass, May 19, 2023

Awaiting Liver Transplant for NASH that marched to liver failure. Critical care and ED/TRAUM RN for 30+ years. Now the patient. Ick! I live in AL I am seeking other, post liver transplant patients, that do not live in Florida. Would love to discuss peoples' experience with finding housing for pre transplant and recovery. Maintaining home in AL? Or move to JAX for a year or so. Furnished stays. MONEY is an issue. I would love a few out of state pt to tell me how they did it. HELLLP! 😊

Interested in more discussions like this? Go to the Transplants Support Group.

Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jul 24, 2023
In reply to @mbentley "We purchased a condo on BAYMEADOWS rd. Got what we wanted in location, ground floor, end..." + (show)
@mbentley

We purchased a condo on BAYMEADOWS rd. Got what we wanted in location, ground floor, end corner unit under trees and next to pool. Close to walk into parking to our door. Pets cost and HOAa reasonable. We paid dearly for it. But we have been happy for our visitors, family and pets we have. And the community neighbors have welcomed us like family. We move here in June2023 and kept our place in Ky. Last week I got the call to come in 5 hours later I was in Mayo Jacksonville being prepared for the liver transplant. In September I would had my exception points and was getting ready for more test in 20 days. But I was fortunate and got in way more early than expected with meld at 16.
We hope to recoup some expenses on sale or yearly rental. But we like it so much now we may keep for a second home. If financially we can make it work.

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@mbentley,
Congratulations on your liver transplant from a fellow Kentuckian!

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1 reply
mbentley | @mbentley | Jul 24, 2023
In reply to @rosemarya "@mbentley, Congratulations on your liver transplant from a fellow Kentuckian!" + (show)
@rosemarya

@mbentley,
Congratulations on your liver transplant from a fellow Kentuckian!

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Thank you. My boy just got back to Stanford/Lincoln county last week after a visit in Fl.
It was a surreal experience and almost a miracle birthday surprise. No dry runs and after a few hours of waiting in room it was over with and done. Walking around nurses station just hours out of surgery. Pain meds still onboard. Next day I could feel the burn. But it was a joyous pain.
Thanks for driving this program of helping others. I’ll stay at our FL condo though out the year and my wife will be flying home for various times. She about to fly out 24 hours before I got called for a week home visit. Wow we never expected a call before my points kicked in in September. It was a blessing how everything worked out. Only way it did was through Gods grace and mercy. So many things could have gone wrong but Gods will keep me on the pathway with him throughout the whole process.

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