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Want to connect with other post liver transplant patients
Transplants | Last Active: Aug 13, 2023 | Replies (78)Comment receiving replies
@lsheerin, I agree that the waiting is hard. And there is no way to predict how long your husband and you will be waiting as @ssapp1, @firecat, @katebw are discussion with you.
Since you are new to the transplant journey, I have located some discussions with some useful information for you from more patient/caregivers like yourself.
- It's not all about the MELD Score
https://connect.mayoclinic.org/discussion/its-not-all-about-the-meld-score/
- Waiting for the Call: What needs to get done at home before you go?
https://connect.mayoclinic.org/discussion/waiting-for-the-call-what-needs-to-get-done-at-home-before-you-go/
- Packing question: What did you have ready for "the call"?
https://connect.mayoclinic.org/discussion/packing-question/
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Transplant Blog Post
- Preparing for Transplant Surgery: Helpful Tips and Considerations
https://connect.mayoclinic.org/blog/transplant/newsfeed-post/preparing-for-transplant-surgery-helpful-tips-and-considerations/
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Replies to "@lsheerin, I agree that the waiting is hard. And there is no way to predict how..."
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Hi Rosemary,
Thank you for the useful information. I am going to read each and every article you sent. I feel, the more information I have, the better I am prepared. Luckily, my husband is not horribly sick and has a good attitude. He's not working, but we still go out when he's up for it. His MELD score goes between 26-28. I love hearing other people's stories...how long they waited on the list, when they got the call and how they felt. I also love to hear how everyone is doing post transplant. It really gives me hope and I love hearing how they feel so much better post surgery. I will read anything anyone wants to send!! Again, thank you for the articles. I am going to start reading them now!!