Has anyone improved bone density without meds?

Posted by naomid @naomid, Mar 21, 2023

I have a very problematic dental history and will continue to need additional root canals and implants. I also have Sjogren's Syndrome and want to avoid any drugs that cause rheumatic symptoms. Other issues in my health history make all of the meds risky for me. That said, I work out almost daily, lift weights, maintain a healthy diet, take all the recommended supplements, and get most of my calcium nutritionally. My endocrinologist wants me to take an infusion/injectable drug. I dread the side-effects, yet I'm afraid of fracturing, which hasn't happened over the many years I have had osteoporosis. That said, my numbers are getting worse (-3.2 spine, -3.1 hip). I need to do something more than I've been doing, and am at a loss. I need hope and solutions I can be at peace with. Thanks for any comments or suggestions!

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@teb

It would be a good idea to look closely at your supplements and see if there are duplicates of particular vitamins and minerals so you can get a better idea of exactly what you are consuming. Your first post mentioned calcium carbonate and vitamin D so some of your supplements may be duplicating others (or not). 21 supplements a day is quite a lot. A low-dose multi is probably okay for most people but in general, it's a good idea to focus on whole, nutrient rich foods and then supplement where your diet may fall short. For example, I cannot eat dairy so it's a bit more challenging to meet my calcium needs. I calculate my calcium on cronometer.com (free) and if I do not meet the daily need of 900-1200 mg, I take a small amount to supplement which generally amounts to about 300 mg a day at most.
It might be a good idea to run this by your provider or meet with a Registered Dietician to see if you are meeting your nutritional needs and/or if your supplements might be too much of a "good thing".

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Thank you for your post. I am getting a blood test and then a diatition to look at what is best.

Too much is often waaay too much.

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@artscaping

Good evening @judy58 . I am glad to hear from you. However, I don't know if I have an answer for you. Alendronate is a drug that protects the bone you have built and strengthed after two years of Tymlos. For me, it is about the effects of medications that you take to retain your strengthed and newly created bone. I am not able to take large dosages of infused drugs. They have long half-lives and my body reacts with pain and discomfort.

To avoid those side effects, I simply take one bill every Monday morning before I do anything else. I sit quietly for 30 minutes without eating or drinking anything to give the tablet time to dissolve effectively. Since starting this routine I have read about others who have found it workable for them without side effects.

You mentioned that you have an endocrinologist at Mayo. Is that person in Rochester? Would it happen to be Dr. Wermers? If so perhaps you can connect with him for more information.

May you have happiness and the causes of happiness.
Chris

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Dr Bart Clark is the doctor I saw He recommended Evenity as that’s the only injection that rebuilds bones. Second choice was Forteo, but does not rebuild bones. What pill do you take.

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@judy58

Dr Bart Clark is the doctor I saw He recommended Evenity as that’s the only injection that rebuilds bones. Second choice was Forteo, but does not rebuild bones. What pill do you take.

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Good evening @judy58. Yes, I see that Dr. Clarke has quite a background at Mayo in Rochester. I only have one question. Somehow the Evenity purpose is a bit mixed up. Evenity is the newest bone-building medication. However, Forteo and Tymlos also build bone. The difference with Evenity is that after building the bone, this medication protects the bone from reabsorption,

With Forteo and Tymlos you have to change to a medication like Prolia or at least start with Reclast to help your body hang on to the new bone. That is why I needed to find a medication that would help me retain my new and strengthened bone.

If you do a search for Evenity in the bar at the top of the screen, you will be taken to a list of all posts about Evenity. Please let me know if you find it.

May you have contentment and ease.
Chris

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@ymv

Is anyone taking vitamin k as part of your osteoporosis treatment? If so, is it k2 or k3? What dose?

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I take NBI brand calcium that has 45 mg Vit K2 as MK4. I also take 90 mcg of MK7. All of this is prescribed by doctors.

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@artscaping

Good evening @judy58. Yes, I see that Dr. Clarke has quite a background at Mayo in Rochester. I only have one question. Somehow the Evenity purpose is a bit mixed up. Evenity is the newest bone-building medication. However, Forteo and Tymlos also build bone. The difference with Evenity is that after building the bone, this medication protects the bone from reabsorption,

With Forteo and Tymlos you have to change to a medication like Prolia or at least start with Reclast to help your body hang on to the new bone. That is why I needed to find a medication that would help me retain my new and strengthened bone.

If you do a search for Evenity in the bar at the top of the screen, you will be taken to a list of all posts about Evenity. Please let me know if you find it.

May you have contentment and ease.
Chris

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@artscaping I have been told that Evenity also has to be followed by another drug to "lock in" gains. The manufacturer suggests Prolia, which is also made by Amgen, but Reclast or alendronate can also be used. According to my docs.

Dr. McCormick's book "Great Bones" explains that Evenity is mainly bone-building for the first 6 months or so and then has an anti-resorptive effect more in the last 6 months, affecting turnover, but less so than Prolia or bisphosphonates.

You wrote: "The difference with Evenity is that after building the bone, this medication protects the bone from reabsorption." My impression from docs is that Evenity does suppress turnover, which is how Prolia and bisphosphonates work (but to a lesser extent) but this is not the same thing as "locking gains in."

Are you hearing that Evenity doesn't require follow-up? I am just trying to clarify your comment. I am doing Tymlos and then Reclast and actually like that Tymlos has no anti-resorptive effect since that means building quality bone, no dental issues and no risk of atypical fracture.

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@ymv

Is anyone taking vitamin k as part of your osteoporosis treatment? If so, is it k2 or k3? What dose?

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I take Ultra K2, 1 capsule per day, from the company Klaire Labs, recommended by my doctor.

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@gigi4

I take Ultra K2, 1 capsule per day, from the company Klaire Labs, recommended by my doctor.

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In addition I also take K2-7+D3, 2 capsules daily, from Vial Proteins, also doctor recommended.

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My only experience with vitamin k was when it was prescribed by a veterinarian to try to save a dog's life as she was suffering from cirrhotic type liver failure. It was to hopefully get her blood to clot. Being as I am on low dose aspirin, as advised by my doctors, I would be afraid to take anything that would negate the benefit of the aspirin.

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@lashu

I'm sorry, I do not know what MD1 and Bb Bone Boots is.

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Sorry. It's Bb Bone Boost. Miss spelled it.

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@windyshores

@artscaping I have been told that Evenity also has to be followed by another drug to "lock in" gains. The manufacturer suggests Prolia, which is also made by Amgen, but Reclast or alendronate can also be used. According to my docs.

Dr. McCormick's book "Great Bones" explains that Evenity is mainly bone-building for the first 6 months or so and then has an anti-resorptive effect more in the last 6 months, affecting turnover, but less so than Prolia or bisphosphonates.

You wrote: "The difference with Evenity is that after building the bone, this medication protects the bone from reabsorption." My impression from docs is that Evenity does suppress turnover, which is how Prolia and bisphosphonates work (but to a lesser extent) but this is not the same thing as "locking gains in."

Are you hearing that Evenity doesn't require follow-up? I am just trying to clarify your comment. I am doing Tymlos and then Reclast and actually like that Tymlos has no anti-resorptive effect since that means building quality bone, no dental issues and no risk of atypical fracture.

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Good afternoon @windyshores. Wow....perhaps I don't understand what "lock-in" means. Is that your terminology or can you find it in my new "Bible"......Great Bones. According to the author, Dr. McCormick, Evenity should be followed by at least 12 months of a biphosphonate to prevent rebound and increased bone resorption.

I so appreciate your help and want to make sure that you and I are on the same page and hopefully using the same language. Just in case you want to check, I am on page 557.

May you have peace and contentment.
Chris

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