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Anyone with Narcolepsy Losing Memory?
Sleep Health | Last Active: Sep 27, 2023 | Replies (22)Comment receiving replies
It wasn't anything like that. I never felt sleep drunk during the day (I got up to go to the bathroom one night and my Xyrem made me feel that way), and the memory problem was 24/7. I have been fighting the disorder for over 2 years now, and my sleep problem at night is way better than it used to be. The memory I lost never got filed for the long term. It was working memory I was using to accomplished things during the day. It's a strange problem. The Neurologist had given me some tests, and she was really surprised when I got my memory back.
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Are you still on Xyrem? I found it to be bad news. I had memory problems, confusion, depression, more cataplexy with injury at night than I ever had. I was on it 5 years, my brain hasn't been the same since. Even my Dr later referred to it as poison. I take Quetiapine now for sleep, it works very well. I've had narcolepsy for 37 years now. Things have gone downhill since Xyrem and I am convinced it has a lot to do with it. I just can't seem to get my brain to function the way it did pre-Xyrem.