Hi guysl,

I had my right kidney/ureter/bladder cuff/adrenal gland and a whole lot of lymph nodes removed August 22, 2022. My resting blood pressure is 113/72. My blood pressure around a doctor is 130/82. I do not have salt in the house and try to buy low salt prepared foods and I drink water, pineapple juice or milk - totalling 1600 to 2000 mL per day.

I went through 4 cycles of chemotherapy (Gemcitaban/cisplatin) before the RNU surgery, and started 12 cycles of Nivolumab immunotherapy 6 weeks after surgery. The entire kidney was compromised and classified as Grade 4 tumour.

The UTUC returned as high grade Non-muscle invasive bladder cancer. All the visible spots and lesions were removed via TransUrothial Resection in March 2023. Did 6 weeks of BCG immunotherapy, which did not work. Now I am scheduled to have a tumour at the site of the bladder cuff resection removed. Odds are that I will loose the bladder within the next year.

Make sure that your urologist does regular cytoscopies to catch any restart of UTUC in the bladder - 50% possibility after RNU.