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I am newly Diagnosed with MGUS.

Blood Cancers & Disorders | Last Active: Feb 6 5:38am | Replies (61)

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@pmm

@katytx brava! Yes I have concluded that it is the anxiety that impacts my health adversely. When I was first diagnosed my anxiety about the “what ifs” made me feel so sick.
I have learned to stay away from Dr Google. My Hem/Onc doc LOVES to go over data with me if I have questions. He lights up like a kid in a candy store as he scrolls through recent literature so I know he is diligent. In the three years I have known him I find him to be an easy read as he scrolls through the results of my quarterly blood draws. His face, last appointment, read that he is cautiously optimistic and I can be trusted on my own recognizance for a six month interval this time.
So I am LIVING my best life. I am enjoying friends, traveling, doing music, theater and keeping my family in touch with one another to the extent that one can with children and grandchildren who are moving targets.
Life is good and I don’t want to miss it because I am too entrenched in the “what ifs.”
In some ways, MGUS is a gift. I get excellent medical care and I have been reminded that life, no matter what your circumstances, is precious and far too short.
Live it!
I am going to the Barbie movie tonight with a dozen of the brightest, most accomplished women I know. We will all don our best pink and laugh and enjoy the humor and sisterhood. Frivolity!
Have a wonderful new week.
Patty

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Replies to "@katytx brava! Yes I have concluded that it is the anxiety that impacts my health adversely...."

The anxiety is a huge piece for me and seeing you able to overcome that makes me feel like it’s possible too.
My next steps are in a couple weeks and I’m hoping my care team can put my test results into context. I think that will relieve a lot…
Seeing everyone’s positive remarks, even those that have progressed in their journey really makes me feel like everything will be ok. I’m so appreciative to have found this group. I take snapshots of these posts so I can quick-look through my photos when I need a positive boost at any moment throughout the day.