← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

Discussion

Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 hour ago | Replies (778)
Comment receiving replies
@jenywilliams

I've been delightrd with camzyos for my condition. I have a genetic heart murmur because a lower part of my heart is hardened. At age 78 I had endrometrius cancer, had a robotic hysterectomy followed with 6 months of chemo treatments. After that I had no energy and couldn't walk without losing breath. Saw a heart Dr who said after testing that I needed camzyos. I started at 5 mg and saw immediate improvement. March 5 after an ultrasound showing better numbers. I was increased to 10 mg. It's WONDERFUL FOR ME. AT 81 I AM FEELING GREAT and hope to have some more quality years.
Know it doesn't have same effect on all bur for me I'm very grateful.

Jump to this post

Replies to "I've been delightrd with camzyos for my condition. I have a genetic heart murmur because a..."
Debra, Volunteer Mentor | @karukgirl | Jul 24, 2023

Thank you for sharing @jenywilliams! What a wonderful testimony for Camzyos! You've have gone through quite a journey...congenital heart disease, endometrial cancer, surgery, chemo and terrible fatigue and barely able to walk.
And here you are, 81 years young, feeling great and grateful and looking forward to more quality years! What a wonderful attitude.
I'm curious about Camzyos being used for something other than Hypertrophic Cardiomyopathy. You mention you have a "genetic heart murmur" because your lower heart is "hardened." Do you know exactly what you were diagnosed with?

VIEW AND REPLY