Good morning-I am so sorry you are not feeling better and now have to be lowered on your dosage. It doesn't make much sense. If anything it seems like the mg should be increased! My doctor and I learned that the doctor can do what he/she thinks is best for the patient. They wanted him to stop my Camzyos altogether because my LVOT was so much lower than when I started, but he said no she needs to stay on it. She is feeling so much better on it than when she started. So hopefully you and your doctor can come up with a plan. Please let us know what happens on Wednesday. 🙂

@jaymaysea, I hope it goes well for you tomorrow at your visit. @kelliw shared that the doctor is in the drivers seat and works with the patient, they can overrule the drug company protocol and adjust as they see fit...maybe your doctor does not know that? How you feel and how you are reacting should be the reason to adjust medication, based on the treating physician's opinion, not on the drug company's protocol. You are a person, not a number!! We are all different and react different. Six weeks seems like you should be seeing better results, but you still feel icky, and HOCM symptoms are still there...GRRR