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Why would hematology and pulmonologist refer me to infectious disease

Posted by timroelofs @timroelofs, Jul 23, 2023

Why would hematology and pulmonologist refer me to infectious disease doctor. Are they running out of solutions ? I have low platelets, low red blood cell count,low hemoglobin and i am anemic. Constant pain at enlarged spleen , shortness and shallow breathing, constant nose bleeds. I have enlarged lymph nodes on lungs which biopsy revealed non cancerous. Any help understanding this is appreciated.

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Mentor
Lori, Volunteer Mentor | @loribmt | Jul 23, 2023

Hello @timroelofs Viral infections, such as mononucleosis
Bacterial infections, such as syphilis or an infection of your heart's inner lining (endocarditis) or Parasitic infections such as malaria can also cause an enlarged spleen so perhaps they’re trying to rule out a possible link there?

You mentioned besides the spleen, that you have low RBC and low platelets, how about your WBC~lymphocytes, monocytes, neutrophils? Have labs been run for latent viral lodes like EBV, CMV, hepatitis?
What other tests have you had run besides basic CBC?

REPLY
1 reply
timroelofs | @timroelofs | Jul 23, 2023
In reply to @loribmt "Hello @timroelofs Viral infections, such as mononucleosis Bacterial infections, such as syphilis or an infection of..." + (show)
@loribmt

Hello @timroelofs Viral infections, such as mononucleosis
Bacterial infections, such as syphilis or an infection of your heart's inner lining (endocarditis) or Parasitic infections such as malaria can also cause an enlarged spleen so perhaps they’re trying to rule out a possible link there?

You mentioned besides the spleen, that you have low RBC and low platelets, how about your WBC~lymphocytes, monocytes, neutrophils? Have labs been run for latent viral lodes like EBV, CMV, hepatitis?
What other tests have you had run besides basic CBC?

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Had so many cbc tests had too look at medical files. Sarcoidosis, thrombocytopenia and anemic diagnosed 2020
Wbc 3.7, Rbc 3.99,neutrophil 49.4, hemoglobin 12.9, hemocritic 39.5. Negative on all hepatitis tests. Last week had a D -dimer test 842,rushed back to ER said it was a okay , no PE or DVT present.
Spleen enlarged at 18.9cm, had bone marrow biopsy and bronchospy all negative. Just nervous on what it all may be. Been a blood issue concern since 2010 with little to no answers on whats happening.

REPLY
2 replies
Mentor
Lori, Volunteer Mentor | @loribmt | Jul 23, 2023
In reply to @timroelofs "Had so many cbc tests had too look at medical files. Sarcoidosis, thrombocytopenia and anemic diagnosed..." + (show)
@timroelofs

Had so many cbc tests had too look at medical files. Sarcoidosis, thrombocytopenia and anemic diagnosed 2020
Wbc 3.7, Rbc 3.99,neutrophil 49.4, hemoglobin 12.9, hemocritic 39.5. Negative on all hepatitis tests. Last week had a D -dimer test 842,rushed back to ER said it was a okay , no PE or DVT present.
Spleen enlarged at 18.9cm, had bone marrow biopsy and bronchospy all negative. Just nervous on what it all may be. Been a blood issue concern since 2010 with little to no answers on whats happening.

Jump to this post

Oh golly you’ve been through the ringer on this! You just listed other tests I was going to ask about such as a bone marrow biopsy. You sound like a man of mystery and leaving your doctor’s scratching their heads.
Hopefully some other members have some input they can offer.
I’m not sure where you live but have you tried a large teaching hospital or considered a medical center like Mayo? They tend to keep on digging until no stone is left unturned. If you’d like to request an appointment at Mayo, here is a link to their main website. You can select which campus you’d be interested in visiting and start the process. http://mayocl.in/1mtmR63

With your D -dimer result being so high is it suggested that you take blood thinners or low dose aspirin?

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 6, 2023
In reply to @timroelofs "Had so many cbc tests had too look at medical files. Sarcoidosis, thrombocytopenia and anemic diagnosed..." + (show)
@timroelofs

Had so many cbc tests had too look at medical files. Sarcoidosis, thrombocytopenia and anemic diagnosed 2020
Wbc 3.7, Rbc 3.99,neutrophil 49.4, hemoglobin 12.9, hemocritic 39.5. Negative on all hepatitis tests. Last week had a D -dimer test 842,rushed back to ER said it was a okay , no PE or DVT present.
Spleen enlarged at 18.9cm, had bone marrow biopsy and bronchospy all negative. Just nervous on what it all may be. Been a blood issue concern since 2010 with little to no answers on whats happening.

Jump to this post

@timroelofs, have you seen the infectious disease specialist? Any updates?

REPLY
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